Formulation of Parent Support Group For DSD

Caregivers of children with DSD often find themselves plagued with a plethora of challenges ranging from long-term health consequences, financial burden of diagnosis and therapy as well as social implications of this rare misunderstood spectrum of disorders. Formulation of support groups for this cohort can serve as a vital platform to share knowledge and experiences, and receive guidance and emotional support empowering them to better adapt to their new role without compromising upon their own mental and emotional well-being. In this chapter, we will describe the purpose of parental support groups, discuss types of support groups, discuss their mode of operation, illustrate steps of formulation, and provide information about existing DSD groups.