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We are members of the Bioethics Working Group of the Japanese Institute for Public Engagement (Ji4pe), composed of patients and the public. Since 2020, we have been continuing monthly Web meetings to learn the World Medical Association (WMA)’s Declaration of Helsinki (DoH) and have achieved mainly the following three publications: During the process, we submitted our opinions in response to two periods of public consultation on the revision of the DoH, organised by the WMA. We hope that the 2024 DoH will be adhered to by all the relevant parties and that our opinions can be included in future global norms. We believe that expressing our opinions will help maximise the impact of the new DoH. This chapter introduces the above process and reproduces the Patient Public Declaration of Research Ethics.

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Patient Public Declaration of Research Ethics: Opinions and Proposals from Patients and the Public on Research Ethics

  • 章节

  • 发表日期：

    2025年

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  • Chieko Kurihara,
  • Yoshiko Saito,
  • Hiroto Kai,
  • Yoshikazu Funabashi,
  • Keiko Inoue,
  • Noriko Kishi,
  • Akemi Kuge,
  • Toshie Murakami,
  • Katsura Suzuki,
  • Hiroko Takahashi,
  • Eiko Uchida,
  • Kyoko Imamura

摘要

We are members of the Bioethics Working Group of the Japanese Institute for Public Engagement (Ji4pe), composed of patients and the public. Since 2020, we have been continuing monthly Web meetings to learn the World Medical Association (WMA)’s Declaration of Helsinki (DoH) and have achieved mainly the following three publications: During the process, we submitted our opinions in response to two periods of public consultation on the revision of the DoH, organised by the WMA. We hope that the 2024 DoH will be adhered to by all the relevant parties and that our opinions can be included in future global norms. We believe that expressing our opinions will help maximise the impact of the new DoH. This chapter introduces the above process and reproduces the Patient Public Declaration of Research Ethics.