Scholarlink

People living with the contested chronic illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID experience prejudice, dismissal and denial of their lived realities, due in part to their illnesses currently having no ‘objective’ biomarkers. This leads to contestations between embodied knowledges versus biomedical perspectives, with the latter historically placing ME/CFS within a psychological paradigm. Drawing on interviews with 20 Australian clinicians, researchers and advocates involved in ME/CFS and Long COVID knowledge production, this chapter examines how knowledge of contested chronic illnesses is socially produced. The research demonstrates both the shifting influence of lived experience as a credible form of expertise in shaping biomedical knowledges and the need to incorporate embodied perspectives in knowledge production to ensure better outcomes for those living with the conditions.

错误：搜索内容不能为空，请输入英文关键词
错误：关键词超出字数限制，请精简
高级检索

‘Just Because You Didn’t Detect It, Doesn’t Mean It’s Not There’: Long COVID, ME/CFS and the Social Dynamics of Biomedical Knowledge Production

  • 章节

  • 发表日期：

    2025年

查看全文
  • Kathy S. Anderson

摘要

People living with the contested chronic illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID experience prejudice, dismissal and denial of their lived realities, due in part to their illnesses currently having no ‘objective’ biomarkers. This leads to contestations between embodied knowledges versus biomedical perspectives, with the latter historically placing ME/CFS within a psychological paradigm. Drawing on interviews with 20 Australian clinicians, researchers and advocates involved in ME/CFS and Long COVID knowledge production, this chapter examines how knowledge of contested chronic illnesses is socially produced. The research demonstrates both the shifting influence of lived experience as a credible form of expertise in shaping biomedical knowledges and the need to incorporate embodied perspectives in knowledge production to ensure better outcomes for those living with the conditions.