Chapter 5 focuses on the ethical, legal, and social dimensions of testing embryos for disabling conditions. Building on the interactional model of disability introduced in the previous chapter, which frames disability as a product of both individual impairments and societal structures, this chapter evaluates whether prospective parents should have the liberty to test for and select against disabling genetic conditions. It begins by addressing objections to this use of PGT, starting with the expressivist argument, which claims that selecting against disabling conditions conveys negative messages about the worth of people living with such conditions. The chapter challenges this view by distinguishing between reducing the incidence of disabilities and devaluing individuals with disabilities. Further, the chapter examines arguments centring around eugenics, the loss of support for those with disabling conditions and the principle of procreative beneficence. The chapter advocates for a revised regulatory framework that allows parents to select against any conditions defined as disabling, thus enabling informed reproductive choices and safeguarding parental autonomy.

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Selecting Against Disabling Conditions

  • Michelle de Souza

摘要

Chapter 5 focuses on the ethical, legal, and social dimensions of testing embryos for disabling conditions. Building on the interactional model of disability introduced in the previous chapter, which frames disability as a product of both individual impairments and societal structures, this chapter evaluates whether prospective parents should have the liberty to test for and select against disabling genetic conditions. It begins by addressing objections to this use of PGT, starting with the expressivist argument, which claims that selecting against disabling conditions conveys negative messages about the worth of people living with such conditions. The chapter challenges this view by distinguishing between reducing the incidence of disabilities and devaluing individuals with disabilities. Further, the chapter examines arguments centring around eugenics, the loss of support for those with disabling conditions and the principle of procreative beneficence. The chapter advocates for a revised regulatory framework that allows parents to select against any conditions defined as disabling, thus enabling informed reproductive choices and safeguarding parental autonomy.