Researching topics marked by social stigma and involving individuals with profound life experiences is a long road paved with hardships. This chapter draws on the challenges and learnings of conducting ethnographic research aimed at understanding the journey of personal recovery from mental illness using visual methodology. This interpretive ethnography spanned 2 years, integrating in-depth interviews with image elicitation, where participants attached personal meaning to images and redefined past events through introspective conversations with the researcher. Even though visual data are a powerful medium of communication and enable researchers to adopt creative methods that enrich research, they demand additional time and effort to prepare participants to participate in a shared understanding of the activity, unlike regular interview procedures. The key challenge experienced in the field was in facilitating conversations about mental health—a topic that remains highly stigmatized in the Indian socio-cultural context. The researcher, in engaging with individuals who have experienced mental illness, requires deep empathy, sensitivity and emotional regulation as participants recount severe life experiences. This chapter is structured around (a) the method followed in ethnographic research, (b) navigating complexities in visual methodology fieldwork, (c) epistemic dilemmas in integrating interviews and images and (d) dealing with positionality, reflexivity and ethics in research. Overall, beyond data extraction, this research turned out to be a meaning-making process for both the researcher and participants.

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Beyond Barriers: Conducting Mental Illness Research Using Visual Methodology

  • S. Aswini

摘要

Researching topics marked by social stigma and involving individuals with profound life experiences is a long road paved with hardships. This chapter draws on the challenges and learnings of conducting ethnographic research aimed at understanding the journey of personal recovery from mental illness using visual methodology. This interpretive ethnography spanned 2 years, integrating in-depth interviews with image elicitation, where participants attached personal meaning to images and redefined past events through introspective conversations with the researcher. Even though visual data are a powerful medium of communication and enable researchers to adopt creative methods that enrich research, they demand additional time and effort to prepare participants to participate in a shared understanding of the activity, unlike regular interview procedures. The key challenge experienced in the field was in facilitating conversations about mental health—a topic that remains highly stigmatized in the Indian socio-cultural context. The researcher, in engaging with individuals who have experienced mental illness, requires deep empathy, sensitivity and emotional regulation as participants recount severe life experiences. This chapter is structured around (a) the method followed in ethnographic research, (b) navigating complexities in visual methodology fieldwork, (c) epistemic dilemmas in integrating interviews and images and (d) dealing with positionality, reflexivity and ethics in research. Overall, beyond data extraction, this research turned out to be a meaning-making process for both the researcher and participants.