A chapter on (ex-)user involvement and ethics should be polyphonic in order to do justice to the complexity of the field. While (ex-)user involvement appears as an ethical imperative, and is an essential policy as well as a legal obligation in mental health care today, it can easily become unethical in practice when the power-issues involved are not addressed. For this chapter, persons with a lived experience of extreme mental distress, (ex-) users and survivors of psychiatry with expertise in research, psychiatrists and legal experts have authored an A–Z, chosen from a suggested list of topics or put forward by their own deliberations, based on the variety of our experiences and expertise.

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A-Z of Ethics of User Involvement in Mental Health Care and Research

  • Elena Demke,
  • Michaela Amering,
  • Ute Kraemer,
  • Gwen Schulz,
  • Marianne Schulze,
  • Peter Stastny,
  • Sebastian von Peter,
  • Anna Werning

摘要

A chapter on (ex-)user involvement and ethics should be polyphonic in order to do justice to the complexity of the field. While (ex-)user involvement appears as an ethical imperative, and is an essential policy as well as a legal obligation in mental health care today, it can easily become unethical in practice when the power-issues involved are not addressed. For this chapter, persons with a lived experience of extreme mental distress, (ex-) users and survivors of psychiatry with expertise in research, psychiatrists and legal experts have authored an A–Z, chosen from a suggested list of topics or put forward by their own deliberations, based on the variety of our experiences and expertise.