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Many American Indian and Alaska Native (AI/AN) Tribes and their citizens view health research as an important component in their strategies to address well-known and widely documented health disparities. AI/AN community interest in improving health through participation in research carries an important caveat—that continuous, meaningful, and transparent community engagement also occur. AI/AN community involvement in the initiation of research, AI/AN community member participation in manuscript development, and the use of AI/AN regulatory agreements in the conduct of research are key features from participatory research that are frequently absent, undercutting respect for the sovereign authority of Tribal Nations to govern research in their communities (e.g., ensure the protection and oversight of their data in the research process). A community-engaged approach to cancer research requires time, trust, teamwork, and resources that are not always supported by research institutions; in fact, many institutional procedures for research can create barriers to the time, trust, and commitment needed for community-engaged research with Tribal populations. In this chapter, the authors describe community engagement efforts within the University of Oklahoma Stephenson Cancer Center’s initiative to Improve Cancer Outcomes in Native American Communities (ICON).

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Community Engagement to Improve Cancer Outcomes Among American Indian and Alaska Native Communities

  • 章节

  • 出版模式：

    开放获取

  • 发表日期：

    2026年

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  • Jessica W. Blanchard,
  • Paul G. Spicer,
  • Bobby Saunkeah,
  • Lancer D. Stephens,
  • Evelyn D. Cox,
  • Kristen Wilson,
  • Mark P. Doescher,
  • Dorothy A. Rhoades,
  • Vanessa Y. Hiratsuka

摘要

Many American Indian and Alaska Native (AI/AN) Tribes and their citizens view health research as an important component in their strategies to address well-known and widely documented health disparities. AI/AN community interest in improving health through participation in research carries an important caveat—that continuous, meaningful, and transparent community engagement also occur. AI/AN community involvement in the initiation of research, AI/AN community member participation in manuscript development, and the use of AI/AN regulatory agreements in the conduct of research are key features from participatory research that are frequently absent, undercutting respect for the sovereign authority of Tribal Nations to govern research in their communities (e.g., ensure the protection and oversight of their data in the research process). A community-engaged approach to cancer research requires time, trust, teamwork, and resources that are not always supported by research institutions; in fact, many institutional procedures for research can create barriers to the time, trust, and commitment needed for community-engaged research with Tribal populations. In this chapter, the authors describe community engagement efforts within the University of Oklahoma Stephenson Cancer Center’s initiative to Improve Cancer Outcomes in Native American Communities (ICON).