This chapter interrogates the lived experience of endometriosis pain through memoir, feminist theory, and disability studies, centering those with chronic pain and illness who defy traditional, social models of disability, whose impairments are progressive, volatile, and often incompatible with dominant narratives of disability pride. Through close readings of Abby Norman’s Ask Me About My Uterus, Lara Parker’s Vagina Problems, and Hilary Mantel’s memoirs, I examine how relentless pelvic and abdominal pain fractures self-perception, undermines bodily trust, and resists incorporation into frameworks that privilege social barriers over the material realities of suffering. The chapter critiques disability studies’ historic reluctance to theorize impairment, challenging its tendency to valorize health-neutral or non-painful embodiments while marginalizing conditions that defy control or adaptation. Engaging with feminist disability critiques of the medical gaze, I trace how medical misogyny compounds this psychic violence, reinforcing cultural narratives of female brokenness. Situated within the “Depression” stage of a grief-based narrative arc, the chapter lingers in the heaviness of brokenness as a stage where theory falters, justice feels abstract, and survival is a daily negotiation. It asks what care, solidarity, and scholarship might look like if we take seriously the experiences of those for whom cure is unattainable and pride is not always accessible, yet whose voices demand theoretical and political recognition.

错误:搜索内容不能为空,请输入英文关键词
错误:关键词超出字数限制,请精简
高级检索

(Depression) I Became My Own Enemy: Pain, Endometriosis Memoirs, and the Rhetoric of a Battle to Stay Alive

  • Maria Rovito

摘要

This chapter interrogates the lived experience of endometriosis pain through memoir, feminist theory, and disability studies, centering those with chronic pain and illness who defy traditional, social models of disability, whose impairments are progressive, volatile, and often incompatible with dominant narratives of disability pride. Through close readings of Abby Norman’s Ask Me About My Uterus, Lara Parker’s Vagina Problems, and Hilary Mantel’s memoirs, I examine how relentless pelvic and abdominal pain fractures self-perception, undermines bodily trust, and resists incorporation into frameworks that privilege social barriers over the material realities of suffering. The chapter critiques disability studies’ historic reluctance to theorize impairment, challenging its tendency to valorize health-neutral or non-painful embodiments while marginalizing conditions that defy control or adaptation. Engaging with feminist disability critiques of the medical gaze, I trace how medical misogyny compounds this psychic violence, reinforcing cultural narratives of female brokenness. Situated within the “Depression” stage of a grief-based narrative arc, the chapter lingers in the heaviness of brokenness as a stage where theory falters, justice feels abstract, and survival is a daily negotiation. It asks what care, solidarity, and scholarship might look like if we take seriously the experiences of those for whom cure is unattainable and pride is not always accessible, yet whose voices demand theoretical and political recognition.