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Patients with hemoglobinopathies have both acute and chronic complications of the disease, which negatively affect their quality of life. The assessment of quality of life and mental resilience in these patients is an important tool to document both the degree of their burden and the important role of mental resilience as a tool to improve quality of life. The aim of the study was to assess the quality of life of people with hemoglobinopathies in Greece, their mental resilience, and their satisfaction with life. A cross-sectional study involving 96 adult patients with hemoglobinopathies was conducted. The instruments used were the “Connor-Davidson Resilience Scale,” the “Life Satisfaction Scale (Satisfaction With Life Scale),” and the “Quality of Life Scale (WHOQOL-BREF).” According to the results, increased mental resilience and good adaptation to the stress of the disease, fairly high life satisfaction, and a fairly good level of quality of life were recorded. Little difference in quality of life was observed between thalassemia patients and sickle cell anemia patients.

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Mental Resilience, Satisfaction from Life, and Quality of Life of People with Hemoglobinopathies

  • 会议论文

  • 发表日期：

    2026年

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  • Ioannis Moisoglou,
  • Georgia Pavlidou,
  • Konstantinos Tsaras,
  • Theodosios Paralikas,
  • Maria Malliarou,
  • Areti Tsaloglidou,
  • Konstantinos Koukourikos,
  • Maria Theodoratou,
  • Ioanna V. Papathanasiou

摘要

Patients with hemoglobinopathies have both acute and chronic complications of the disease, which negatively affect their quality of life. The assessment of quality of life and mental resilience in these patients is an important tool to document both the degree of their burden and the important role of mental resilience as a tool to improve quality of life. The aim of the study was to assess the quality of life of people with hemoglobinopathies in Greece, their mental resilience, and their satisfaction with life. A cross-sectional study involving 96 adult patients with hemoglobinopathies was conducted. The instruments used were the “Connor-Davidson Resilience Scale,” the “Life Satisfaction Scale (Satisfaction With Life Scale),” and the “Quality of Life Scale (WHOQOL-BREF).” According to the results, increased mental resilience and good adaptation to the stress of the disease, fairly high life satisfaction, and a fairly good level of quality of life were recorded. Little difference in quality of life was observed between thalassemia patients and sickle cell anemia patients.