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Patient Generated Health Data (PGHD) can be communicated to a health facility without the need for frequent hospital visits. This is very valuable to patients with long-term health conditions that require regular monitoring of vitals. The VODAN project, which deployed a digital health data system based on the FAIR principles, commenced in 2020 and has increased the potential for digital data curation and use in clinics in different countries in both Africa and Asia, but currently no systems are in place for the integration of external data from patients with long term health problems. In this paper, we combine two (2) PGHD sources - a wearable device and a home digital monitor whose data is communicated through an Interactive Voice Response (IVR) system - to increase the connectivity of patients with long term health problems with the clinics using the VODAN system, and propose a solution in the form of a data pipeline prototype based upon multiple PGHD sources. Additionally, we design a visualization tool useful for the practitioner to interact with this data.

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Semantic Integration of Heterogeneous PGHD Sources in a Digital Health System

  • 会议论文

  • 发表日期：

    2026年

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  • Rens Kievit,
  • Abdullahi Abubakar Kawu,
  • Harold Ekow Eshun,
  • Samson Yohannes Amare,
  • Mirjam van Reisen,
  • Dympna O’Sullivan,
  • Lucy Hederman

摘要

Patient Generated Health Data (PGHD) can be communicated to a health facility without the need for frequent hospital visits. This is very valuable to patients with long-term health conditions that require regular monitoring of vitals. The VODAN project, which deployed a digital health data system based on the FAIR principles, commenced in 2020 and has increased the potential for digital data curation and use in clinics in different countries in both Africa and Asia, but currently no systems are in place for the integration of external data from patients with long term health problems. In this paper, we combine two (2) PGHD sources - a wearable device and a home digital monitor whose data is communicated through an Interactive Voice Response (IVR) system - to increase the connectivity of patients with long term health problems with the clinics using the VODAN system, and propose a solution in the form of a data pipeline prototype based upon multiple PGHD sources. Additionally, we design a visualization tool useful for the practitioner to interact with this data.