This chapter will consider to what extent patient engagement can move us toward affective justice. I will in particular explore the potential of increased patient participation to provide affective resources, opportunities, and recognition for patients. This may happen in the consultation, via the integration of patient partners/advocates in healthcare delivery, and with the implication of patient associations. While the chapter is focused mainly on the potential of this methodology for patients, I will also consider how the greater involvement of citizens may provide some new safe spaces for healthcare providers. While I will argue for the potential of these new forms of health democracy as a way to work toward affective justice, I will also pay close attention to the risks for patients and healthcare providers in their inclusion, notably the potential risk of experiencing affective injustice because of their involvement. In the last section of this chapter, I will also focus on the affective injustice that patient partners/advocates may experience in these new forms of engagement.

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Affective Justice, Health Democracy, and Citizen Engagement

  • Brenda Bogaert

摘要

This chapter will consider to what extent patient engagement can move us toward affective justice. I will in particular explore the potential of increased patient participation to provide affective resources, opportunities, and recognition for patients. This may happen in the consultation, via the integration of patient partners/advocates in healthcare delivery, and with the implication of patient associations. While the chapter is focused mainly on the potential of this methodology for patients, I will also consider how the greater involvement of citizens may provide some new safe spaces for healthcare providers. While I will argue for the potential of these new forms of health democracy as a way to work toward affective justice, I will also pay close attention to the risks for patients and healthcare providers in their inclusion, notably the potential risk of experiencing affective injustice because of their involvement. In the last section of this chapter, I will also focus on the affective injustice that patient partners/advocates may experience in these new forms of engagement.