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The increasing complexity of healthcare data management requires advanced solutions to ensure privacy, security, and regulatory compliance. Consent management, in particular, is a critical component of patient-centered care in the digital age, as patients need complete control over how their sensitive health information is accessed and used. This paper presents the PAROMA-MED platform, which introduces a user-centric consent management framework designed to improve transparency and trust in healthcare data exchanges. By integrating technologies such as the Fast Healthcare Interoperability Resources (FHIR) standard, the EU Data Space Connector, and an intuitive user interface, PAROMA-MED empowers patients to control their health data. We explore the technical and user interaction aspects of the platform, highlighting how it addresses the challenges of consent management while ensuring regulatory compliance with GDPR. This paper discusses the implications of these technologies for improving healthcare delivery and fostering patient engagement.

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Advancing Healthcare Consent Management: The PAROMA-MED Platform’s Integration of User-Centered Interfaces, FHIR, and the EU Data Space Connector

  • 会议论文

  • 发表日期：

    2025年

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  • Benjamin Ertl,
  • Konstantinos Koutsopoulos,
  • Pooja Mohnani,
  • Orazio Toscano,
  • Giannis Ledakis,
  • Stefan Covaci

摘要

The increasing complexity of healthcare data management requires advanced solutions to ensure privacy, security, and regulatory compliance. Consent management, in particular, is a critical component of patient-centered care in the digital age, as patients need complete control over how their sensitive health information is accessed and used. This paper presents the PAROMA-MED platform, which introduces a user-centric consent management framework designed to improve transparency and trust in healthcare data exchanges. By integrating technologies such as the Fast Healthcare Interoperability Resources (FHIR) standard, the EU Data Space Connector, and an intuitive user interface, PAROMA-MED empowers patients to control their health data. We explore the technical and user interaction aspects of the platform, highlighting how it addresses the challenges of consent management while ensuring regulatory compliance with GDPR. This paper discusses the implications of these technologies for improving healthcare delivery and fostering patient engagement.