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Having a child with medical complexity (CMC) greatly impacts parents and siblings, and can negatively affect the socioeconomic status of the family. Supporting families in caring for their children is paramount to improving the health and experiences of CMC. This includes supporting the siblings, seeking out creative ways to provide home nursing, and finding resources such as state Medicaid waiver programs to finance needed equipment and services. National organizations, often parent-led, can provide additional layers of support for families in finding resources.

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Community and Family Partnerships

  • 章节

  • 发表日期：

    2025年

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  • Nancy Murphy,
  • Justin C. Alvey,
  • Jennifer Brinton,
  • Natalie Heyrend Darro,
  • Jason Fox,
  • E. Avery Hill,
  • Kathleen Irby,
  • Andrew Robertson,
  • Laura Smals-Murphy

摘要

Having a child with medical complexity (CMC) greatly impacts parents and siblings, and can negatively affect the socioeconomic status of the family. Supporting families in caring for their children is paramount to improving the health and experiences of CMC. This includes supporting the siblings, seeking out creative ways to provide home nursing, and finding resources such as state Medicaid waiver programs to finance needed equipment and services. National organizations, often parent-led, can provide additional layers of support for families in finding resources.