A fundamental aspect in the management of unpredictable, remitting, and relapsing disease should be to empower patients to lead independent lives, to go to school, work, have families, and much more (Ye and Travis, Intest Res 17(1):45–53, 2019; Chen et al., Health Educ Behav 43(1):25–34, 2016). Individualized advice and access to care is key to this goal, and achieving it is considered part of best practice in IBD services (Duncan et al., https://www.rcn.org.uk/Professional-Development/publications/rcn-framework-for-nurses-working-in-inflammatory-bowel-disease-in-adult-and-paediatric-care-011-811#orderTab , 2024; Okobi et al., Cureus 13(8):e16859, 2021; Kemp et al., J Crohns Colitis 12 (7):760–776, 2018; IBD Standards, www.ibdstandards.org.uk , 2013; Younge and Norton, Br J Nurs 16(4):208–212, 2007; van der Eijk et al., Eur J Int Med 15:113–120, 2004). From the inception of the IBD nurse role, IBD nurses are key, consistent members of the multidisciplinary team (MDT) and well placed to provide this care (Chauhan et al., https://cdhf.ca/wp-content/uploads/2023/02/IBD-nurse-report-1.pdf , 2022; Rosso et al., Nurs Rep 11(2):229–241, 2021; Leach et al., J Crohns Colitis 8(5):370–374, 2014; Kemp et al., J Crohns Colitis 7(9):e386–e395, 2013; Nightingale et al., Nurse Prescr 5(7):289–295, 2000). The patient perspective, most importantly, views the nurse as ‘always there’ and so is highly valued for direct expertise and timely access to further care when needed (Belling et al., Int J Nurs Pract 14:67–73, 2008; Woods et al., A systematic review of the effectiveness of inflammatory bowel disease specialist nurses. London South Bank University, London, 2006). For many centres it is the ‘Advice Line’ or ‘Help Line’ that best utilizes the advantage of the IBD nursing post and enables the link between the patient and specialist care when needed, facilitating the need for access often recommended (Pearson 2005; Torjesen 2012; Carter et al., Gut 53(Suppl V):V1–V6, 2004). The literature cited ranges from consensus opinion to audit and questionnaire, and it has been suggested that individual centre studies in particular lack the design, methodology, and detail to support adequate statistical analysis (Hernandez-Sampelayo et al., J Crohns Colitis 4:611–622, 2010). However the body of literature continues to grow and Advice Lines have become a basic expectation for IBD services (Karimi et al., Eur J Gastroenterol Hepatol 33(1S):e771–e776, 2021; Sechi et al., J Crohns Colitis 10(suppl_1):S494, 2016; Golik et al., Prz Gastroenterol 9(4):179–193, 2014). This chapter offers a practical approach with recognition of safety and quality issues:

Advice Lines

章节
发表日期：

2025年

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Lydia White,
David Semedo Raimundo

摘要

A fundamental aspect in the management of unpredictable, remitting, and relapsing disease should be to empower patients to lead independent lives, to go to school, work, have families, and much more (Ye and Travis, Intest Res 17(1):45–53, 2019; Chen et al., Health Educ Behav 43(1):25–34, 2016). Individualized advice and access to care is key to this goal, and achieving it is considered part of best practice in IBD services (Duncan et al., https://www.rcn.org.uk/Professional-Development/publications/rcn-framework-for-nurses-working-in-inflammatory-bowel-disease-in-adult-and-paediatric-care-011-811#orderTab , 2024; Okobi et al., Cureus 13(8):e16859, 2021; Kemp et al., J Crohns Colitis 12 (7):760–776, 2018; IBD Standards, www.ibdstandards.org.uk , 2013; Younge and Norton, Br J Nurs 16(4):208–212, 2007; van der Eijk et al., Eur J Int Med 15:113–120, 2004). From the inception of the IBD nurse role, IBD nurses are key, consistent members of the multidisciplinary team (MDT) and well placed to provide this care (Chauhan et al., https://cdhf.ca/wp-content/uploads/2023/02/IBD-nurse-report-1.pdf , 2022; Rosso et al., Nurs Rep 11(2):229–241, 2021; Leach et al., J Crohns Colitis 8(5):370–374, 2014; Kemp et al., J Crohns Colitis 7(9):e386–e395, 2013; Nightingale et al., Nurse Prescr 5(7):289–295, 2000). The patient perspective, most importantly, views the nurse as ‘always there’ and so is highly valued for direct expertise and timely access to further care when needed (Belling et al., Int J Nurs Pract 14:67–73, 2008; Woods et al., A systematic review of the effectiveness of inflammatory bowel disease specialist nurses. London South Bank University, London, 2006). For many centres it is the ‘Advice Line’ or ‘Help Line’ that best utilizes the advantage of the IBD nursing post and enables the link between the patient and specialist care when needed, facilitating the need for access often recommended (Pearson 2005; Torjesen 2012; Carter et al., Gut 53(Suppl V):V1–V6, 2004). The literature cited ranges from consensus opinion to audit and questionnaire, and it has been suggested that individual centre studies in particular lack the design, methodology, and detail to support adequate statistical analysis (Hernandez-Sampelayo et al., J Crohns Colitis 4:611–622, 2010). However the body of literature continues to grow and Advice Lines have become a basic expectation for IBD services (Karimi et al., Eur J Gastroenterol Hepatol 33(1S):e771–e776, 2021; Sechi et al., J Crohns Colitis 10(suppl_1):S494, 2016; Golik et al., Prz Gastroenterol 9(4):179–193, 2014). This chapter offers a practical approach with recognition of safety and quality issues: