In this final chapter, we summarise the interrelated ways in which Tourette’s syndrome (TS) stigma is socially constructed and perpetuated through policy, systems, and structures. We re-visit how the trivialisation of TS as a ‘lesser disability’ fosters societal misconceptions and structural inequities, shaping the lived experiences of people with Tourette’s and their families. By integrating insights from preceding discussions, we reveal the interplay between interpersonal prejudice, structural inequalities, and cultural narratives, offering a new way of understanding of how stigma is maintained. We also call for a shift in perspective, framing destigmatisation as a social justice issue requiring collective accountability. Advocating for the development of theory-driven and evidence-based targeted interventions, that address both individual attitudes and systemic inequities, we emphasise the need for sustained, multifaceted approaches. We end by reiterating that meaningful change requires long-term commitment and a focus on both structural and societal transformation and we urge stakeholders to prioritise stigma reduction and equitable support for people with Tourette’s.

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Conclusion

  • Melina Aikaterini Malli,
  • Rachel Forrester-Jones

摘要

In this final chapter, we summarise the interrelated ways in which Tourette’s syndrome (TS) stigma is socially constructed and perpetuated through policy, systems, and structures. We re-visit how the trivialisation of TS as a ‘lesser disability’ fosters societal misconceptions and structural inequities, shaping the lived experiences of people with Tourette’s and their families. By integrating insights from preceding discussions, we reveal the interplay between interpersonal prejudice, structural inequalities, and cultural narratives, offering a new way of understanding of how stigma is maintained. We also call for a shift in perspective, framing destigmatisation as a social justice issue requiring collective accountability. Advocating for the development of theory-driven and evidence-based targeted interventions, that address both individual attitudes and systemic inequities, we emphasise the need for sustained, multifaceted approaches. We end by reiterating that meaningful change requires long-term commitment and a focus on both structural and societal transformation and we urge stakeholders to prioritise stigma reduction and equitable support for people with Tourette’s.