Management of Tourette’s Stigma
摘要
In this chapter we explore the multifaceted ways people with Tourette’s try to manage and navigate Tourette’s syndrome (TS) stigma. Drawing on qualitative data from participant interviews, the chapter examines common coping mechanisms, such as suppression of tics, social withdrawal, and identity concealment, which are driven by societal expectations of normalcy. While a minority of individuals embrace advocacy, self-education, and collective pride in Tourette’s syndrome (TS), others internalise societal stereotypes, leading to self-stigma and isolation. We also contrast the fragmented Tourette’s community with more established disability movements, discussing how the perceived lower social prestige of TS contributes to the lack of collective pride and advocacy. We also highlight how societal misperceptions and the absence of role models contribute to the marginalisation of people with Tourette’s. We end by calling for increased public awareness, education, and societal acceptance to mitigate the psychological and social burdens of living with Tourette’s. Through the lens of identity formation and stigma management, there is a need for broader systemic change to foster a more inclusive environment for people with Tourette’s.