This chapter aims to explore and document the experiences and contributions of fathers who are actively involved in the care of their disabled children. Six fathers shared their stories and experiences in detail. The research material was analyzed using Jackson and Mazzei’s ‘thinking with theory’ approach. The findings show that fathers are indeed ‘becoming fathers’ (Braidotti), challenging traditional gender stereotypes of caregiving; they seem to be able to adapt and reorganize their embodied habitus (Doucet) to meet the unique needs of their children. An extremely important theme in the fathers’ stories is the emphasis on ‘togetherness’; shared activities open opportunities for fathers and children to develop and grow. This study highlights the importance of fathers in families with disabled children. They can contribute to the caregiving process and thus redefine the role of a ‘good father’: they show responsibility, and they invest in a sensitive and responsive relational care.

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Suppose We Listen to Fathers of Children with Disabilities: Our Own Little Research Project

  • Geert Van Hove

摘要

This chapter aims to explore and document the experiences and contributions of fathers who are actively involved in the care of their disabled children. Six fathers shared their stories and experiences in detail. The research material was analyzed using Jackson and Mazzei’s ‘thinking with theory’ approach. The findings show that fathers are indeed ‘becoming fathers’ (Braidotti), challenging traditional gender stereotypes of caregiving; they seem to be able to adapt and reorganize their embodied habitus (Doucet) to meet the unique needs of their children. An extremely important theme in the fathers’ stories is the emphasis on ‘togetherness’; shared activities open opportunities for fathers and children to develop and grow. This study highlights the importance of fathers in families with disabled children. They can contribute to the caregiving process and thus redefine the role of a ‘good father’: they show responsibility, and they invest in a sensitive and responsive relational care.