Avoiding Amputation and Prosthetics in Children with Complex Lower Limb Deformities

Hemangiomatosis is a rare bone disorder that may cause limb length inequality and asymmetrically affect the growth plate resulting in angular deformity. This patient is a 14 year old female with hemangiomatosis of the right tibia and fibula with a severe tibial deformity and limb length discrepancy. She was treated with tibial osteotomies, a Taylor Spatial Frame (TSF), bone marrow injections, bone graft, and open reduction internal fixation with William’s Nail & Synthes Locking Plate. In treating this disorder one needs to address the biology of the bone as well as the deformity itself. In doing so we were able to achieve an excellent outcome even in the presence of this aggressive disease.