ED Practical Management
摘要
Relevance of the recognition for ectodermal dysplasia’s (ED) patients, families, and Associations from the health services and the assignment to ED for the status of “rare disease” are mandatory. This socio-political recognition is noteworthy for specific “therapeutic plans,” devoted to assure to ED patients medical therapies and devices (i.e., health service gratuity for dental therapies and prosthesis, air conditioning…) and surgery when needed.