Ethical Considerations Arising in the Assessment, Treatment, and Support of Individuals and Families Living with FASD

Fetal Alcohol Spectrum Disorder (FASD) is the disability associated with prenatal alcohol exposure (PAE). Because it is linked specifically to maternal alcohol consumption, FASD presents several unique ethical challenges for professionals (e.g., clinicians), families, and those living with FASD. Foremost of these is balancing the need for strong prevention messaging regarding the dangers of PAE with the stigma and blame that may be placed on mothers who have consumed alcohol in their pregnancy. Given the negative stereotypes associated with FASD, there is controversy about the value, advantages, and disadvantages of conferring and receiving this diagnosis for individuals and families. This chapter discusses the ethical challenges associated with crafting effective and non-stigmatizing public health messaging about FASD, issues of mother-blame and the villainizing of women who consume alcohol in pregnancy, and an overview of some of the ethical considerations in the assessment, diagnosis, treatment, and support of individuals and families living with FASD. The chapter also offers recommendations for improving our approach and support of these individuals and their families and creating programs and services which are both welcoming and effective.