Stressors and Transitions in Families with a Child Affected by Long COVID: “Behind Every Sick Child Is a Family That Is Completely Out of Balance”

COVID-19 induces persistent effects in children and adolescents, with uncertain disease burden and inconsistent data on prevalence, symptoms, and course. Long COVID symptoms overlap with nonspecific issues and psychosocial stress, compounded by lockdowns and distancing measures. Amid limited scientific comprehension, severely impacted youth require enhanced healthcare access. Many grapple with prolonged school absence, social disconnection, bodily estrangement, and psychological distress. Germany’s Jena University Hospital initiated the first long COVID outpatient clinic for children, addressing such cases. The “LongCOCid” (Long COVID in Children) research project, backed by the German Federal Ministry of Education and Research, employs interdisciplinary collaboration. A qualitative arm explores parents’ perspectives on their children’s diagnosis, uncovering family stressors, transitions, and adjustments. Rooted in family-centered care, this approach recognizes families as integral to healthcare. This chapter presents preliminary findings from this study and discusses their implications.