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Background <p>Patient-reported outcomes (PROs) are increasingly recognized as valuable data to enhance communication and support shared decision-making in cancer care. Despite evidence of their positive effects, few concrete approaches exist for the design and presentation of PRO visualizations. Even in high-incidence cancers such as breast cancer, limited knowledge is available on how patients perceive and interpret graphical displays of PRO results. This study evaluated different visualization formats of PRO data, that had been co-designed with patients and healthcare providers within the PRO B study, a large randomized controlled trial investigating alert-based PRO monitoring in patients with metastatic breast cancer.</p> Methodology <p>After completion of the PRO B study, patients from both intervention and control group received a paper-based questionnaire together with their individual PRO data report featuring visualizations developed in a preceding design study. Survey items assessed comprehensibility, usefulness, and preferences regarding specific visualization features using Likert scales. Analyses included Mann-Whitney U tests for Likert scale answers, Pearson’s Chi-squared tests for categorical variables and two-sided independent-samples t-tests for numeric variables.</p> Results <p>We collected feedback from 276 participants of the PRO B study. The findings demonstrate a strong overall endorsement on the clarity, emotional appropriateness and usefulness of the suggested graphical displays. Results highlight their potential for enhancing patient empowerment through improved self-awareness and better patient-provider communication.</p> Conclusions <p>The positive feedback from PRO B study participants validate the suggested design concepts of PRO data and underscores their valuable role in making these outcomes more accessible, meaningful, and actionable for patients. These data provide the base for developing more flexible, interactive digital tools for routine care.</p> Trial registration <p>DRKS00024015 Registered 15.02.2021 <a href="https://drks.de/search/de/trial/DRKS00024015/details">https://drks.de/search/de/trial/DRKS00024015/details</a>.</p>

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Quantitative assessment of visual designs for communicating patient-reported outcomes in breast cancer care to patients

  • 期刊论文

  • 出版模式：

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  • 发表日期：

    2025年12月20日

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  • Lea Doppelbauer,
  • Anna Maria Hage,
  • Maria Margarete Karsten,
  • Pimrapat Gebert,
  • Anna Tatzber,
  • Laura Hatzler,
  • Jasper Brands,
  • Rosanne Andriessen,
  • Therese Pross

摘要

Background

Patient-reported outcomes (PROs) are increasingly recognized as valuable data to enhance communication and support shared decision-making in cancer care. Despite evidence of their positive effects, few concrete approaches exist for the design and presentation of PRO visualizations. Even in high-incidence cancers such as breast cancer, limited knowledge is available on how patients perceive and interpret graphical displays of PRO results. This study evaluated different visualization formats of PRO data, that had been co-designed with patients and healthcare providers within the PRO B study, a large randomized controlled trial investigating alert-based PRO monitoring in patients with metastatic breast cancer.

Methodology

After completion of the PRO B study, patients from both intervention and control group received a paper-based questionnaire together with their individual PRO data report featuring visualizations developed in a preceding design study. Survey items assessed comprehensibility, usefulness, and preferences regarding specific visualization features using Likert scales. Analyses included Mann-Whitney U tests for Likert scale answers, Pearson’s Chi-squared tests for categorical variables and two-sided independent-samples t-tests for numeric variables.

Results

We collected feedback from 276 participants of the PRO B study. The findings demonstrate a strong overall endorsement on the clarity, emotional appropriateness and usefulness of the suggested graphical displays. Results highlight their potential for enhancing patient empowerment through improved self-awareness and better patient-provider communication.

Conclusions

The positive feedback from PRO B study participants validate the suggested design concepts of PRO data and underscores their valuable role in making these outcomes more accessible, meaningful, and actionable for patients. These data provide the base for developing more flexible, interactive digital tools for routine care.

Trial registration

DRKS00024015 Registered 15.02.2021 https://drks.de/search/de/trial/DRKS00024015/details.