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<p>Patient partnership in health research has gained prominence over the last decade. Patient partners and the impact of their perspectives on research activities and outcomes are increasingly valued. However, despite the recognized importance of patient contributions, issues persist regarding their visibility in research outputs. While guidelines for authorship and acknowledgment of patient partners exist, inconsistencies in their application remain prevalent. This commentary surveys the current landscape of authorship, acknowledgement, and indexing practices for patient involvement in health research. We highlight three persistent challenges: (1) insufficient recognition of patient partners who meet the criteria for co-authorship or formal acknowledgment; (2) vague reporting of patient partner contributions within manuscripts; and (3) widely varying terminology and indexing terms that hinder discoverability in academic databases. To address these challenges, we propose actionable recommendations: Following existing reporting guidelines or instituting new guidelines for patient engagement within academic journals; documenting patient partner contributions in searchable fields of publications; and adopting consistent and standardized terminology for patient engagement. By implementing these changes, the health research community can better capture and recognize the valuable contributions of patient partners, thereby advancing Patient-Oriented Research practices and ultimately improving health outcomes for patients and families.</p>

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Giving credit where credit’s due - recognition of patient partners in health research

  • 期刊论文

  • 出版模式：

    开放获取

  • 发表日期：

    2026年1月12日

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  • Danielle Pietramala,
  • Gabriel Zamma,
  • Candice Barrans,
  • Elaha Niazi,
  • Colleen Pawliuk,
  • Anne-Mette Hermansen,
  • Hal Siden

摘要

Patient partnership in health research has gained prominence over the last decade. Patient partners and the impact of their perspectives on research activities and outcomes are increasingly valued. However, despite the recognized importance of patient contributions, issues persist regarding their visibility in research outputs. While guidelines for authorship and acknowledgment of patient partners exist, inconsistencies in their application remain prevalent. This commentary surveys the current landscape of authorship, acknowledgement, and indexing practices for patient involvement in health research. We highlight three persistent challenges: (1) insufficient recognition of patient partners who meet the criteria for co-authorship or formal acknowledgment; (2) vague reporting of patient partner contributions within manuscripts; and (3) widely varying terminology and indexing terms that hinder discoverability in academic databases. To address these challenges, we propose actionable recommendations: Following existing reporting guidelines or instituting new guidelines for patient engagement within academic journals; documenting patient partner contributions in searchable fields of publications; and adopting consistent and standardized terminology for patient engagement. By implementing these changes, the health research community can better capture and recognize the valuable contributions of patient partners, thereby advancing Patient-Oriented Research practices and ultimately improving health outcomes for patients and families.