Scholarlink

Background <p>Engaging people with lived experience and their families (PWLE/F) as partners in mental health and substance use research can have a positive impact. One way to understand this engagement process and its impact is by reporting on it in peer-reviewed papers. However, little is known about the experiences of PWLE/F and researchers regarding the reporting of engagement activities in peer-reviewed papers and navigating the writing process for such publications.</p> Methods <p>This qualitative descriptive study aimed to explore the experiences of PWLE/F and researchers with the writing process for engagement in mental health and substance use research. Separate from participants, PWLE/F were engaged in all phases of the study as partners during the research process. Interviews were conducted with 13 PWLE/F and 12 researchers across Canada via Zoom. Interviews were analyzed using reflexive thematic analysis.</p> Results <p>Three themes captured the experiences of PWLE/F: navigating uncharted territories, the disclosure dilemma, and paving the way for meaningful co-authorship. Four themes represented the experiences of researchers: prioritizing informed co-authorship, frustrations with reporting on engagement, navigating how and when to report on engagement, and finding clarity amidst ambiguity.</p> Conclusions <p>This study sheds light on the complex experiences of PWLE/F and researchers with the writing process for engagement-focused papers. Overall findings indicate a need for clear guidance for both researchers and PWLE/F involved in mental health and substance use research projects, particularly around what to report on and how to meaningfully collaborate in peer-reviewed papers.</p>

错误：搜索内容不能为空，请输入英文关键词
错误：关键词超出字数限制，请精简
高级检索

The perspectives of people with lived experience, families, and researchers with the manuscript writing process in mental health and substance use research: a qualitative study

  • 期刊论文

  • 出版模式：

    开放获取

  • 发表日期：

    2025年11月13日

查看全文
  • Natasha Y. Sheikhan,
  • Kerry Kuluski,
  • Melissa Hiebert,
  • Charlotte Munro,
  • Vivien Cappe,
  • Mary Rose van Kesteren,
  • Sean Kidd,
  • Lisa D. Hawke

摘要

Background

Engaging people with lived experience and their families (PWLE/F) as partners in mental health and substance use research can have a positive impact. One way to understand this engagement process and its impact is by reporting on it in peer-reviewed papers. However, little is known about the experiences of PWLE/F and researchers regarding the reporting of engagement activities in peer-reviewed papers and navigating the writing process for such publications.

Methods

This qualitative descriptive study aimed to explore the experiences of PWLE/F and researchers with the writing process for engagement in mental health and substance use research. Separate from participants, PWLE/F were engaged in all phases of the study as partners during the research process. Interviews were conducted with 13 PWLE/F and 12 researchers across Canada via Zoom. Interviews were analyzed using reflexive thematic analysis.

Results

Three themes captured the experiences of PWLE/F: navigating uncharted territories, the disclosure dilemma, and paving the way for meaningful co-authorship. Four themes represented the experiences of researchers: prioritizing informed co-authorship, frustrations with reporting on engagement, navigating how and when to report on engagement, and finding clarity amidst ambiguity.

Conclusions

This study sheds light on the complex experiences of PWLE/F and researchers with the writing process for engagement-focused papers. Overall findings indicate a need for clear guidance for both researchers and PWLE/F involved in mental health and substance use research projects, particularly around what to report on and how to meaningfully collaborate in peer-reviewed papers.