Looking at two psychological interventions with family caregivers of people with dementia through their own lenses: lessons learned
摘要
There is interest in demonstrating which interventions with caregivers are most effective. However, there has been little research on their own perception of such efficacy. This study aims to identify and compare the benefits perceived by family caregivers of people with dementia of two interventions (psychoeducational intervention -PI- and support group -SG-) and to see if there are differences in their assessments and narratives depending on whether they show clinically relevant changes after the intervention.
MethodsTwenty-five randomly assigned family caregivers participated in either a PI or a SG, and their pre-post treatment depressive symptomatology was assessed. Whether they obtained a clinically relevant change was determined by calculating the reliable change index, to classify them as Responders (R+) or Non-responders (NoR+) to each intervention. Participants’ perceptions of intervention effectiveness were assessed through structured and open-ended questions. Qualitative data were analyzed using the Framework Method, enabling systematic comparison between interventions and between clinical response profiles.
ResultsAlthough the proportion of R + was higher in the PI group, caregivers in both interventions described positive experiences and highlighted learning and emotional support as key benefits. Narratives from SG participants revealed a desire for more practical strategies, suggesting the added value of psychoeducational components. Perceived benefits did not differ substantially between R + and NoR+, indicating that caregivers can experience meaningful gains even without measurable symptom improvement.
ConclusionsCaregivers perceive both psychoeducational and support group interventions as beneficial. Integrating emotional support with structured psychoeducational content may enhance the clinical impact of caregiver interventions. Exploring caregivers’ experiences using systematic qualitative methods provides essential insights that complement quantitative outcomes and inform more tailored and effective interventions.