Background <p>As the number of people with a migration background in Germany continues to rise, it is becoming increasingly critical to provide dementia care that addresses their needs. This study investigates the specific needs and barriers faced by people with a Turkish migration background in accessing dementia-related services, as well as the challenges experienced by healthcare professionals. By directly comparing family caregivers with and without a Turkish migration background, and by including healthcare professionals with and without a migration background, this study addresses an important research gap and explores how cultural narratives shape perceptions of good dementia care.</p> Methods <p>We conducted semi-structured, in-depth interviews with 11 professionals and 15 family caregivers of Turkish and German descent in Germany from November 2023 to June 2024. Data were analyzed using qualitative content analysis to identify key themes related to care experiences, service accessibility, and cultural perceptions of good dementia care.</p> Results <p>Family caregivers with a Turkish migration background often had limited knowledge of dementia, experienced cultural stigma, and preferred to care for their relatives at home due to strong familial and cultural expectations as well as financial barriers. They made little use of formal support services, often due to language barriers, fear of social judgment, and lack of culturally appropriate care options. In contrast, caregivers without migration background were generally better informed, more open to external help, and more likely to access professional care services. These differences were also influenced by the educational level of the interviewees, with higher levels of education linked to better knowledge and greater use of support structures. Interviews with professionals supported these findings. The need for diagnosis tools for foreign-born people and the need for culturally sensitive care based on biographical information was emphasized.</p> Conclusions <p>This study highlights the urgent need for culturally sensitive dementia care in Germany with the aim of addressing the knowledge gaps, language barriers, and ethical conflicts encountered by people with a migration background. Incorporating individuals’ cultural needs into healthcare can improve access, alleviate the burden on families, and ensure that care is addressed to their needs.</p>

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Expectations, realities and challenges of good dementia care for Turkish migrants in Germany: a qualitative interview study

  • Ela Nadine Yüzgülen,
  • Sabine Salloch,
  • Zümrüt Alpinar-Segawa

摘要

Background

As the number of people with a migration background in Germany continues to rise, it is becoming increasingly critical to provide dementia care that addresses their needs. This study investigates the specific needs and barriers faced by people with a Turkish migration background in accessing dementia-related services, as well as the challenges experienced by healthcare professionals. By directly comparing family caregivers with and without a Turkish migration background, and by including healthcare professionals with and without a migration background, this study addresses an important research gap and explores how cultural narratives shape perceptions of good dementia care.

Methods

We conducted semi-structured, in-depth interviews with 11 professionals and 15 family caregivers of Turkish and German descent in Germany from November 2023 to June 2024. Data were analyzed using qualitative content analysis to identify key themes related to care experiences, service accessibility, and cultural perceptions of good dementia care.

Results

Family caregivers with a Turkish migration background often had limited knowledge of dementia, experienced cultural stigma, and preferred to care for their relatives at home due to strong familial and cultural expectations as well as financial barriers. They made little use of formal support services, often due to language barriers, fear of social judgment, and lack of culturally appropriate care options. In contrast, caregivers without migration background were generally better informed, more open to external help, and more likely to access professional care services. These differences were also influenced by the educational level of the interviewees, with higher levels of education linked to better knowledge and greater use of support structures. Interviews with professionals supported these findings. The need for diagnosis tools for foreign-born people and the need for culturally sensitive care based on biographical information was emphasized.

Conclusions

This study highlights the urgent need for culturally sensitive dementia care in Germany with the aim of addressing the knowledge gaps, language barriers, and ethical conflicts encountered by people with a migration background. Incorporating individuals’ cultural needs into healthcare can improve access, alleviate the burden on families, and ensure that care is addressed to their needs.