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Background <p>An increasing number of patients in the palliative phase of their disease are cared for at home by palliative home care services. A sense of security, normality of everyday life and symptom control are found to be active factors of quality of care in Specialized Palliative Home Care. Whether this also applies to General Palliative Home Care has not yet been systematically investigated. The aim of this study was to identify distinctions between General and Specialized Palliative Home Care from a healthcare professional’s perspective concerning those factors.</p> Methods <p>With a qualitative approach, we conducted 11 semi-structured interviews with healthcare professionals from different professional backgrounds in General and/or Specialized Palliative Home Care.</p> Results <p>In both General and Specialized Palliative Home Care, healthcare-professionals (HCP) found a <i>sense of security</i> (through <i>availability</i>) to be most relevant for the patients. The majority saw aspects of <i>normality of everyday life</i> as a key component for high-quality palliative home care, especially <i>having time</i> for the patient and the family caregiver(s). However, statements about <i>symptom control</i> are mainly related to Specialized Palliative Home Care. The subcodes <i>availability</i>, <i>having time</i> and <i>competence, symptom burden</i> and <i>financial resources</i> were the main distinguishing factors between General and Specialized Palliative Home Care in <i>sense of security</i>, <i>normality of everyday life</i> and <i>symptom control,</i> respectively.</p> Conclusions <p>Our results provide the basis for a clearer definition of GPHC and SPHC and contribute to identifying factors for a transferal between the two services to provide best care for the patient. Distinguishing (sub)factors revealed challenges and short-term solutions. Providing (financial) incentives to guarantee time and availability in General Palliative Home Care would lead to more effective care.</p>

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"We need time, a great know-how and security for patients to always be there in time”: a qualitative study on factors distinguishing General from Specialized Palliative Home Care

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  • 发表日期：

    2025年2月13日

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  • Melanie Joshi,
  • Kim Dillen,
  • Norbert Krumm,
  • Michaela Hesse,
  • Holger Brunsch,
  • Julia Strupp,
  • Lukas Radbruch,
  • Roman Rolke,
  • Raymond Voltz,
  • Holger Pfaff,
  • Nadine Scholten,
  • Martin Hellmich,
  • Christian Rietz,
  • Ingo Meyer,
  • Robin Fink

摘要

Background

An increasing number of patients in the palliative phase of their disease are cared for at home by palliative home care services. A sense of security, normality of everyday life and symptom control are found to be active factors of quality of care in Specialized Palliative Home Care. Whether this also applies to General Palliative Home Care has not yet been systematically investigated. The aim of this study was to identify distinctions between General and Specialized Palliative Home Care from a healthcare professional’s perspective concerning those factors.

Methods

With a qualitative approach, we conducted 11 semi-structured interviews with healthcare professionals from different professional backgrounds in General and/or Specialized Palliative Home Care.

Results

In both General and Specialized Palliative Home Care, healthcare-professionals (HCP) found a sense of security (through availability) to be most relevant for the patients. The majority saw aspects of normality of everyday life as a key component for high-quality palliative home care, especially having time for the patient and the family caregiver(s). However, statements about symptom control are mainly related to Specialized Palliative Home Care. The subcodes availability, having time and competence, symptom burden and financial resources were the main distinguishing factors between General and Specialized Palliative Home Care in sense of security, normality of everyday life and symptom control, respectively.

Conclusions

Our results provide the basis for a clearer definition of GPHC and SPHC and contribute to identifying factors for a transferal between the two services to provide best care for the patient. Distinguishing (sub)factors revealed challenges and short-term solutions. Providing (financial) incentives to guarantee time and availability in General Palliative Home Care would lead to more effective care.