Objective <p>This study aimed to synthesize existing qualitative evidence on how parents experience and navigate death preparedness when facing the impending loss of a child, and to identify key challenges and support needs relevant to clinical practice.</p> Methods <p>A qualitative meta-synthesis was conducted using Thomas and Harden’s thematic synthesis approach. Databases including PubMed, Web of Science, Embase, Cochrane Library, CINAHL, PsycINFO, CNKI, and VIP were systematically searched from inception to May 28, 2026.</p> Results <p>Seventeen studies were included. Eleven descriptive subthemes were identified and further organized into five analytical themes. (1) Oscillation Between Awareness and Avoidance, (2) Forced Urgent Preparation Crises, (3) Needs for Prognostic Information on the Dying Trajectory, (4) Rejection of Preparation Alone, (5) Construction of Meaning in the Face of Inevitable Loss.</p> Conclusion <p>Death preparedness among parents is a dynamic, nonlinear, and relational process. Clinical support should move beyond promoting acceptance alone and instead focus on reducing decisional burden, improving communication, providing practical guidance, and supporting relational and meaning-making processes.</p>

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Parental experiences of death preparedness at the end of life of their children: a qualitative meta-synthesis

  • Xinyi Li,
  • Liangfeng Yang,
  • Zuxi Feng,
  • Yuqin Ma

摘要

Objective

This study aimed to synthesize existing qualitative evidence on how parents experience and navigate death preparedness when facing the impending loss of a child, and to identify key challenges and support needs relevant to clinical practice.

Methods

A qualitative meta-synthesis was conducted using Thomas and Harden’s thematic synthesis approach. Databases including PubMed, Web of Science, Embase, Cochrane Library, CINAHL, PsycINFO, CNKI, and VIP were systematically searched from inception to May 28, 2026.

Results

Seventeen studies were included. Eleven descriptive subthemes were identified and further organized into five analytical themes. (1) Oscillation Between Awareness and Avoidance, (2) Forced Urgent Preparation Crises, (3) Needs for Prognostic Information on the Dying Trajectory, (4) Rejection of Preparation Alone, (5) Construction of Meaning in the Face of Inevitable Loss.

Conclusion

Death preparedness among parents is a dynamic, nonlinear, and relational process. Clinical support should move beyond promoting acceptance alone and instead focus on reducing decisional burden, improving communication, providing practical guidance, and supporting relational and meaning-making processes.