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Background <p>Resilience plays an important role in sustaining diabetes self-care among older adults living with chronic illness. However, little is known about how resilience is experienced and enacted in diabetes self-management within sociocultural contexts. This study aims to explores the lived experience and meaning of resilience in self-care among older adults with diabetes in Northeast Malaysia.</p> Methods <p>This qualitative study was informed by hermeneutic phenomenology to explore older adults’ lived experiences of resilience in diabetes self-care. Participants were recruited from a primary care clinic within a tertiary hospital in Northeast Malaysia, and purposive sampling was used to select individuals with diverse experiences of diabetes management. Twenty-eight in-depth interviews were conducted in Malay, audio-recorded, and transcribed verbatim. Data were analyzed inductively using reflexive thematic analysis within an interpretive framework, allowing patterns of meaning across participants’ narratives to be identified and interpreted. Illustrative quotations were translated into English for reporting. In this study, resilience in self-care is understood as participants’ capacity to adapt, sustain, and re-engage in diabetes self-management practices despite of self-care challenges.</p> Results <p>Four themes described resilience processes in diabetes self-care: (1) navigating sociocultural food norms and traditional health beliefs; (2) chronic self-management burden and psychosocial constraints; (3) Seeking knowledge and spiritual coping nurtured resilience; and (4) resilience in self-care required perseverance and acceptance. Participants’ experiences revealed that resilience was a dynamic process involving cycles of adherence, disengagement, and re-engagement in self-care practices.</p> Conclusion <p>Resilience in diabetes self-care emerges through ongoing negotiation between cultural expectations, personal coping resources, and healthcare support. Interventions should focus on strengthening culturally responsive diabetes education and supporting psychosocial and spiritual coping resources that enable older adults to sustain engagement in self-care.</p>

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“Difficult, but I Survived”: a hermeneutic qualitative study of the lived experience and meanings of resilience in self-care among older adults with diabetes in Northeast Malaysia

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  • 出版模式：

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  • 发表日期：

    2026年5月13日

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  • Maryam Mohd Zulkifli,
  • Rosediani Muhamad,
  • Razlina Abdul Rahman,
  • Azidah Abdul Kadir,
  • Norlaila Mustafa,
  • Pranee Liamputtong

摘要

Background

Resilience plays an important role in sustaining diabetes self-care among older adults living with chronic illness. However, little is known about how resilience is experienced and enacted in diabetes self-management within sociocultural contexts. This study aims to explores the lived experience and meaning of resilience in self-care among older adults with diabetes in Northeast Malaysia.

Methods

This qualitative study was informed by hermeneutic phenomenology to explore older adults’ lived experiences of resilience in diabetes self-care. Participants were recruited from a primary care clinic within a tertiary hospital in Northeast Malaysia, and purposive sampling was used to select individuals with diverse experiences of diabetes management. Twenty-eight in-depth interviews were conducted in Malay, audio-recorded, and transcribed verbatim. Data were analyzed inductively using reflexive thematic analysis within an interpretive framework, allowing patterns of meaning across participants’ narratives to be identified and interpreted. Illustrative quotations were translated into English for reporting. In this study, resilience in self-care is understood as participants’ capacity to adapt, sustain, and re-engage in diabetes self-management practices despite of self-care challenges.

Results

Four themes described resilience processes in diabetes self-care: (1) navigating sociocultural food norms and traditional health beliefs; (2) chronic self-management burden and psychosocial constraints; (3) Seeking knowledge and spiritual coping nurtured resilience; and (4) resilience in self-care required perseverance and acceptance. Participants’ experiences revealed that resilience was a dynamic process involving cycles of adherence, disengagement, and re-engagement in self-care practices.

Conclusion

Resilience in diabetes self-care emerges through ongoing negotiation between cultural expectations, personal coping resources, and healthcare support. Interventions should focus on strengthening culturally responsive diabetes education and supporting psychosocial and spiritual coping resources that enable older adults to sustain engagement in self-care.