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Background <p>There is limited experience in combining interdisciplinary rehabilitation for persons with dementia and caregiver support.</p> Aim <p>To explore how informal caregivers perceive participation in a person-centred, multidimensional, interdisciplinary rehabilitation programme targeting community-dwelling older adults with dementia and their informal caregivers, and how the programme has influenced their everyday life.</p> Material and Methods <p>Fourteen informal caregivers, aged 45–84 years, participated in a qualitative interview following a randomised controlled pilot study. Transcribed interviews were analysed using qualitative content analysis.</p> Results <p>The analysis resulted in seven categories and three themes: <i>feeling</i><i>challenged and boosted</i><i>to face an uncertain future</i>, <i>perceiving supportive activities as sources of</i><i>both</i><i>joy and frustration in everyday life</i> and <i>finding relief in recognising their relative’s former self.</i></p> Conclusions and Significance <p>Combining interdisciplinary rehabilitation for adults with dementia with education and support for caregivers was perceived as viable and valuable for the informal caregivers. They felt strengthened by the rehabilitation and better prepared for their uncertain future. However, participation also challenged everyday routines, but the benefits appeared to outweigh the strain.</p>

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Informal caregivers’ perspectives on participation in a dementia rehabilitation programme

  • 期刊论文

  • 出版模式：

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  • 发表日期：

    2025年1月1日

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  • Josefine Lampinen,
  • Ingeborg Nilsson,
  • Mia Conradsson,
  • Håkan Littbrand,
  • Anna Sondell,
  • Yngve Gustafson,
  • Jerry Öhlin,
  • Nina Lindelöf

摘要

Background

There is limited experience in combining interdisciplinary rehabilitation for persons with dementia and caregiver support.

Aim

To explore how informal caregivers perceive participation in a person-centred, multidimensional, interdisciplinary rehabilitation programme targeting community-dwelling older adults with dementia and their informal caregivers, and how the programme has influenced their everyday life.

Material and Methods

Fourteen informal caregivers, aged 45–84 years, participated in a qualitative interview following a randomised controlled pilot study. Transcribed interviews were analysed using qualitative content analysis.

Results

The analysis resulted in seven categories and three themes: feelingchallenged and boostedto face an uncertain future, perceiving supportive activities as sources ofbothjoy and frustration in everyday life and finding relief in recognising their relative’s former self.

Conclusions and Significance

Combining interdisciplinary rehabilitation for adults with dementia with education and support for caregivers was perceived as viable and valuable for the informal caregivers. They felt strengthened by the rehabilitation and better prepared for their uncertain future. However, participation also challenged everyday routines, but the benefits appeared to outweigh the strain.