“They are not almighty god, they are doctors, they are human”: a qualitative study of mechanisms underlying epistemic injustices in chronic pain patients’ testimonies
摘要
Chronic pain invalidation in medical encounters has important consequences, including higher reported pain levels, lower well-being, increased disability, and poorer mental health outcomes. To understand this phenomenon, some studies use the theoretical framework of epistemic injustices, which consist of the lower value granted to someone’s knowledge due to biases affecting their credibility (testimonial injustice), or due to a lack of shared resources in understanding and sharing their own experience, which affects intelligibility (hermeneutical injustice). Literature on epistemic injustices in healthcare is almost exclusively theoretical, occulting the voices of those primarily affected by these injustices. This gap is contributing to the reproduction of epistemic injustices in scientific literature by giving a lower consideration to relevant lived experience. This study aims at better understanding the mechanisms allowing epistemic injustices to occur in the patient-healthcare provider relationship from a patient perspective. Narrative interviews (n = 17), with people living with chronic pain recounting their validation and invalidation experiences in health encounters, were conducted. Results identify mechanisms underlying testimonial injustices (i.e., stereotypes based on oppression systems and providers’ epistemic authority), hermeneutical injustices (i.e., dominance of a biomedical scheme and limitations of language), and both (i.e., institutional opacity and other organizational issues). These results provide an integrated view of some mechanisms underlying epistemic injustices that may contribute to elaborate more efficient interventions to limit epistemic injustices in the relationship between patients and healthcare providers.