Scholarlink

<p>Post-treatment transitions after active cancer care often lack clear ownership, timelines and closure rules, shifting coordination work onto survivors and staff. We aimed to identify how these failures arise and to co-design a handover standard for post-treatment survivorship care. In a two-stage qualitative study, Stage A involved semi-structured interviews with survivors and professionals (<i>n</i> = 65) across head and neck, colorectal and gastrointestinal stromal tumour pathways; Stage B comprised four co-design workshops (<i>n</i> = 21). We identified a mechanism we term mirrored burden, in which routine letters and electronic records fail to make responsibility explicit and both survivors and staff end up chasing care. Co-design produced a four-component handover standard centred on accountable correspondence, a clinically senior survivorship lead practitioner with delegated authority, clinic-based resolution capacity, and equity safeguards for non-digital access and communication needs, plus four equity-stratified audit-ready feasibility indicators for service-level evaluation.</p>

错误：搜索内容不能为空，请输入英文关键词
错误：关键词超出字数限制，请精简
高级检索

The mirrored burden and accountable handovers in cancer survivorship: co‑designing a post‑treatment transition standard

  • 期刊论文

  • 出版模式：

    开放获取

  • 发表日期：

    2026年8月5日

查看全文
  • Patrick Kierkegaard,
  • Bowen Su,
  • Dorothy Gujral,
  • Karen Liesching-Schroder,
  • Pernilla Lagergren,
  • Alison McGregor,
  • Justin Grayer

摘要

Post-treatment transitions after active cancer care often lack clear ownership, timelines and closure rules, shifting coordination work onto survivors and staff. We aimed to identify how these failures arise and to co-design a handover standard for post-treatment survivorship care. In a two-stage qualitative study, Stage A involved semi-structured interviews with survivors and professionals (n = 65) across head and neck, colorectal and gastrointestinal stromal tumour pathways; Stage B comprised four co-design workshops (n = 21). We identified a mechanism we term mirrored burden, in which routine letters and electronic records fail to make responsibility explicit and both survivors and staff end up chasing care. Co-design produced a four-component handover standard centred on accountable correspondence, a clinically senior survivorship lead practitioner with delegated authority, clinic-based resolution capacity, and equity safeguards for non-digital access and communication needs, plus four equity-stratified audit-ready feasibility indicators for service-level evaluation.