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<p>This multi-country study systematically assessed 124 publicly accessible online dementia resources across 17 countries. Using an evidence-based taxonomy, the study assessed alignment with carer needs regarding disease knowledge, healthcare navigation, financial/legal support, and self-care. Findings reveal disparities in availability and quality, with limited internet infrastructure creates a barrier to online support in lower-connectivity settings. NGO-led provision dominated (68%), though quality varied (mean domain coverage: 47-96%). Financial and legal information was notably underrepresented, potentially reflecting localized regulatory complexity and a “clinical-first” development focus. Higher-scoring resources were associated with clearer governance and dedicated funding. Technical accessibility (WCAG 2.1 Level AA) was variable. The study identified adaptable delivery models, including digital integration and cultural adaptation. This research establishes a baseline for monitoring equity and offers policy recommendations for minimum standards, health-system integration, and hybrid delivery to support equitable access to dementia information and support globally.</p>

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The global landscape of online dementia resources

  • 期刊论文

  • 出版模式：

    开放获取

  • 发表日期：

    2026年2月26日

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  • Irina Kinchin,
  • Charlèss Dupont,
  • Inbal Mayan,
  • Yaohua Chen,
  • Iracema Leroi,
  • Arianna Almirall Sanchez,
  • Emmanuel Epenge,
  • Eliza Georgiou,
  • Petya Grigorova,
  • Aline Haas,
  • Wambūi Karanja,
  • Tomás León,
  • Rachel Milte,
  • Khyati Tripathi,
  • Emily R. Adrion

摘要

This multi-country study systematically assessed 124 publicly accessible online dementia resources across 17 countries. Using an evidence-based taxonomy, the study assessed alignment with carer needs regarding disease knowledge, healthcare navigation, financial/legal support, and self-care. Findings reveal disparities in availability and quality, with limited internet infrastructure creates a barrier to online support in lower-connectivity settings. NGO-led provision dominated (68%), though quality varied (mean domain coverage: 47-96%). Financial and legal information was notably underrepresented, potentially reflecting localized regulatory complexity and a “clinical-first” development focus. Higher-scoring resources were associated with clearer governance and dedicated funding. Technical accessibility (WCAG 2.1 Level AA) was variable. The study identified adaptable delivery models, including digital integration and cultural adaptation. This research establishes a baseline for monitoring equity and offers policy recommendations for minimum standards, health-system integration, and hybrid delivery to support equitable access to dementia information and support globally.