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<p>Despite repeated calls from international governing bodies for benefit sharing in biomedical research as a means of promoting mutual trust and reciprocity, real-world examples of benefit sharing are lacking. Here, we discuss benefit-sharing initiatives instituted as part of human genomics research projects carried out in both semi-rural and urban settings in South Africa. We explore lessons learned from applying different approaches to benefit sharing, as well as recommendations for ways to enhance success for future initiatives. Ultimately, we advocate for the adoption of flexible benefit-sharing models that take into consideration community representation and engagement, benefit management mechanisms, and long-term sustainability.</p>

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From urban NPOs to rural knowledge networks: applying benefit-sharing models to African genomics research

  • 期刊论文

  • 出版模式：

    开放获取

  • 发表日期：

    2026年2月19日

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  • Ngonidzashe Ngwarai,
  • Furahini Tluway,
  • Nokthula Mayindi,
  • Jackson Mabasa,
  • Given Mashaba,
  • Simon Khoza,
  • Jennifer Hove,
  • Dorcus Khoza,
  • Floidy Wafawanaka,
  • Shingirai Chipungu,
  • Dzunisani Ndlovu,
  • Brian Mdaka,
  • Tsakani Ngobeni,
  • Andrew Phiri,
  • Jeffrey Tibane,
  • F. Xavier Gómez-Olivé,
  • Stephen Tollman,
  • Vukosi Nomses Mkansi,
  • Lisa K. Micklesfield,
  • Mmalehlokoana Maria Manabile,
  • Solomon S. Rampai Choma,
  • Prathap Kasina,
  • Erin Burke,
  • Michèle Ramsay,
  • June Fabian,
  • Sarah LeBaron von Baeyer

摘要

Despite repeated calls from international governing bodies for benefit sharing in biomedical research as a means of promoting mutual trust and reciprocity, real-world examples of benefit sharing are lacking. Here, we discuss benefit-sharing initiatives instituted as part of human genomics research projects carried out in both semi-rural and urban settings in South Africa. We explore lessons learned from applying different approaches to benefit sharing, as well as recommendations for ways to enhance success for future initiatives. Ultimately, we advocate for the adoption of flexible benefit-sharing models that take into consideration community representation and engagement, benefit management mechanisms, and long-term sustainability.