Objective <p>Describe parent-reported family and individual parental resilience while caring for a child with dextro-Transposition of the Great Arteries (d-TGA) and identify family resilience correlates.</p> Study design <p>The sample comprised 47 families of children with d-TGA and a comparator of 26 families of children with Ventricular Septal Defect (VSD). Parents completed the Walsh Family Resilience Questionnaire (family resilience) and Connor-Davidson Resilience Scale (individual resilience).</p> Results <p>d-TGA and VSD groups did not significantly differ in family resilience (Cohen’s <i>d</i> = -0.43, <i>p</i> = 0.09) or individual resilience (Cohen’s <i>d</i> = -0.24, <i>p</i> = 0.34). After adjusting for cardiac diagnosis, greater family resilience was associated with greater perceived social support (ß = 0.60, <i>p</i> &lt; 0.001), parental well-being (ß&#xa0;=&#xa0;0.27, <i>p</i> = 0.01), and family health risk (ß&#xa0;=&#xa0;0.19, <i>p</i> = 0.04).</p> Conclusions <p>In this cross-sectional study, parents of children with d-TGA report similar family and individual parental resilience to parents of children with surgically repaired VSD. Integrated tiered models of psychosocial care and interventions targeting social support and well-being are recommended to promote family resilience.</p>

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Resilience in families of children with dextro-transposition of the great arteries

  • Karen J. Eagleson,
  • Nadine A. Kasparian,
  • Robert N. Justo,
  • Samudragupta Bora

摘要

Objective

Describe parent-reported family and individual parental resilience while caring for a child with dextro-Transposition of the Great Arteries (d-TGA) and identify family resilience correlates.

Study design

The sample comprised 47 families of children with d-TGA and a comparator of 26 families of children with Ventricular Septal Defect (VSD). Parents completed the Walsh Family Resilience Questionnaire (family resilience) and Connor-Davidson Resilience Scale (individual resilience).

Results

d-TGA and VSD groups did not significantly differ in family resilience (Cohen’s d = -0.43, p = 0.09) or individual resilience (Cohen’s d = -0.24, p = 0.34). After adjusting for cardiac diagnosis, greater family resilience was associated with greater perceived social support (ß = 0.60, p < 0.001), parental well-being (ß = 0.27, p = 0.01), and family health risk (ß = 0.19, p = 0.04).

Conclusions

In this cross-sectional study, parents of children with d-TGA report similar family and individual parental resilience to parents of children with surgically repaired VSD. Integrated tiered models of psychosocial care and interventions targeting social support and well-being are recommended to promote family resilience.