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Objectives <p>This paper explores how Positive Behaviour Support (PBS) can be reframed through the lens of an autistic practitioner’s lived experience. It focuses on embedding the values of assent and compassion into PBS practice and how these values align with the human rights of people with neurodevelopmental disabilities.</p> Methods <p>Using a narrative methodology, the author draws on personal lived experience as both an autistic individual and a PBS practitioner. The paper also engages with inclusive research and co-design literature to examine how lived experience can inform ethical and effective support practices.</p> Results <p>The paper identifies three key messages:</p> <p>Assent must be actively sought and respected as a fundamental human right.</p> <p>Compassion is a measurable and teachable skill that is essential for ethical behaviour support.</p> <p>Lived experience must guide the development of support systems, research, and policy. These findings challenge traditional models that exclude the voices of those most affected and highlight the importance of relational and rights-based approaches.</p> Conclusions <p>Reframing PBS through a human rights lens requires the practical integration of assent and compassion into everyday practice. Grounded in autistic lived experience, this paper positions these values not as abstract ideals but as essential principles for inclusive and ethical support. This approach contributes to advancing more equitable disability policy, legislation, and research aligned with the UN Convention on the Rights of Persons with Disabilities (CRPD).</p>

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Embedding Assent and Compassion: Reframing Positive Behaviour Support Through an Autistic Practitioner’s Lived Experience

  • 期刊论文

  • 发表日期：

    2026年5月22日

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  • Lauren Jakeway,
  • Jeffrey Chan

摘要

Objectives

This paper explores how Positive Behaviour Support (PBS) can be reframed through the lens of an autistic practitioner’s lived experience. It focuses on embedding the values of assent and compassion into PBS practice and how these values align with the human rights of people with neurodevelopmental disabilities.

Methods

Using a narrative methodology, the author draws on personal lived experience as both an autistic individual and a PBS practitioner. The paper also engages with inclusive research and co-design literature to examine how lived experience can inform ethical and effective support practices.

Results

The paper identifies three key messages:

Assent must be actively sought and respected as a fundamental human right.

Compassion is a measurable and teachable skill that is essential for ethical behaviour support.

Lived experience must guide the development of support systems, research, and policy. These findings challenge traditional models that exclude the voices of those most affected and highlight the importance of relational and rights-based approaches.

Conclusions

Reframing PBS through a human rights lens requires the practical integration of assent and compassion into everyday practice. Grounded in autistic lived experience, this paper positions these values not as abstract ideals but as essential principles for inclusive and ethical support. This approach contributes to advancing more equitable disability policy, legislation, and research aligned with the UN Convention on the Rights of Persons with Disabilities (CRPD).