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Objectives <p>Hispanic populations are underrepresented in epidemiologic studies. We aimed to evaluate the feasibility of using the Florida Cancer Registry to enlist Hispanic women with breast cancer for population-based cancer research.</p> Methods <p>From September 2023 to April 2024, we recruited adult (age ≥ 20&#xa0;years) Hispanic/Latina women diagnosed with breast cancer to a study examining the quality of life among Hispanic breast cancer survivors. Following the state-mandated patient recruitment procedures, potential participants were contacted via mail to gauge their willingness to participate. Interested participants completed the survey via mail or online in their preferred language.</p> Results <p>Out of 3398 potentially eligible women per the Florida Cancer Registry, 1385 were contactable, and 1234 were determined to be eligible. Of those eligible, 715 agreed to participate and 519 refused. As of October 2024, 408 women completed the survey, leading to 41% contact rate, 89% eligibility rate, 58% recruitment rate, and 57% survey completion rate. Compared to the sampling frame, those contactable and eligible were younger, diagnosed recently at a younger age, and diagnosed with early-stage diseases. Compared to eligible women who did not participate, those who participated were younger, diagnosed at a younger age, and completed surgery and chemotherapy. There were no differences in other characteristics, including Hispanic origin.</p> Conclusions <p>This study demonstrated the feasibility of using the Florida Cancer Data System (FCDS) state-mandated patient recruitment procedure to recruit a representative and culturally diverse Hispanic population in cancer survivorship research. However, the procedures and surveys need better strategies to improve contact rates and survey completion rates.</p>

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Recruitment Feasibility of Hispanic Women in Breast Cancer Survivorship Research Using State Cancer Registry Procedures

  • 期刊论文

  • 发表日期：

    2025年8月7日

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  • Eunkyung Lee,
  • Brian D. Sukhu,
  • Maria Eduarda de Azevedo Daruge,
  • Jongik Chung,
  • Robert B. Hines,
  • Victoria Loerzel

摘要

Objectives

Hispanic populations are underrepresented in epidemiologic studies. We aimed to evaluate the feasibility of using the Florida Cancer Registry to enlist Hispanic women with breast cancer for population-based cancer research.

Methods

From September 2023 to April 2024, we recruited adult (age ≥ 20 years) Hispanic/Latina women diagnosed with breast cancer to a study examining the quality of life among Hispanic breast cancer survivors. Following the state-mandated patient recruitment procedures, potential participants were contacted via mail to gauge their willingness to participate. Interested participants completed the survey via mail or online in their preferred language.

Results

Out of 3398 potentially eligible women per the Florida Cancer Registry, 1385 were contactable, and 1234 were determined to be eligible. Of those eligible, 715 agreed to participate and 519 refused. As of October 2024, 408 women completed the survey, leading to 41% contact rate, 89% eligibility rate, 58% recruitment rate, and 57% survey completion rate. Compared to the sampling frame, those contactable and eligible were younger, diagnosed recently at a younger age, and diagnosed with early-stage diseases. Compared to eligible women who did not participate, those who participated were younger, diagnosed at a younger age, and completed surgery and chemotherapy. There were no differences in other characteristics, including Hispanic origin.

Conclusions

This study demonstrated the feasibility of using the Florida Cancer Data System (FCDS) state-mandated patient recruitment procedure to recruit a representative and culturally diverse Hispanic population in cancer survivorship research. However, the procedures and surveys need better strategies to improve contact rates and survey completion rates.