<p>Neuroendocrine tumors (NETs) present unique challenges due to their rarity, complex diagnosis, and disparities in access to treatment. Despite advances in diagnostic tools and therapies, patients—particularly in low- and middle-income countries—continue to face delays in diagnosis and limited access to radioligand therapies (RLT) such as <sup>177</sup>Lu-DOTA-octapeptides. Patient organizations play a crucial role in advocating for equitable access to these life-saving treatments by raising awareness, influencing healthcare policies, and fostering collaborations between stakeholders. This article highlights the impact of patient organizations, with a focus on the Oncidium Foundation and its commitment to global RLT accessibility. Through initiatives like RLT-Connect, the foundation bridges gaps between healthcare professionals and radioisotope suppliers, ensuring patients receive essential care. A patient’s journey illustrates how advocacy efforts can lead to systemic change, improving access to innovative cancer treatments. Strengthening collaboration between patient organizations, healthcare providers, and policymakers is essential for building a more inclusive and sustainable cancer care ecosystem.</p>

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Advancing access to radioligand therapies for neuroendocrine tumours: the role of patient organizations

  • Sugandha Dureja,
  • Chiara Maria Grana,
  • Rebecca Lo Bue,
  • Tala Allahham,
  • Laura L. Travaini,
  • Alice Fialho Viana

摘要

Neuroendocrine tumors (NETs) present unique challenges due to their rarity, complex diagnosis, and disparities in access to treatment. Despite advances in diagnostic tools and therapies, patients—particularly in low- and middle-income countries—continue to face delays in diagnosis and limited access to radioligand therapies (RLT) such as 177Lu-DOTA-octapeptides. Patient organizations play a crucial role in advocating for equitable access to these life-saving treatments by raising awareness, influencing healthcare policies, and fostering collaborations between stakeholders. This article highlights the impact of patient organizations, with a focus on the Oncidium Foundation and its commitment to global RLT accessibility. Through initiatives like RLT-Connect, the foundation bridges gaps between healthcare professionals and radioisotope suppliers, ensuring patients receive essential care. A patient’s journey illustrates how advocacy efforts can lead to systemic change, improving access to innovative cancer treatments. Strengthening collaboration between patient organizations, healthcare providers, and policymakers is essential for building a more inclusive and sustainable cancer care ecosystem.