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Introduction <p>Hidradenitis suppurativa (HS) is a chronic inflammatory skin disease associated with considerable physical and psychosocial distress. Recent studies have reported low levels of satisfaction among patients with HS regarding the medical care of their condition. The objective of the study was to identify modifiable determinants of low satisfaction with HS care from both patient and dermatologist perspectives.</p> Methods <p>This prospective, questionnaire-based survey was conducted among patients with HS and, for comparison, among those with psoriasis, as well as their treating dermatologists, in 20 dermatological centres in Germany.</p> Results <p>A total of 257 patients and 76 dermatologists participated in the study. The proportion of patients reporting high satisfaction with care for their skin disease (scores &gt; 8 on a 0–10 scale) was 30.7% for HS and 69.4% for psoriasis (<i>P</i> &lt; 0.001). The proportion of dermatologists highly satisfied with medical care for HS and psoriasis was 0.0% and 38.9%, respectively (<i>P</i> &lt; 0.001). Multiple regression modelling revealed that satisfaction with pharmacotherapy was the primary predictor of medical care satisfaction for both patients and dermatologists. Experience with systemic antibiotics was associated with lower patient satisfaction regarding pharmacotherapy, while satisfaction tended to be higher when patients had experienced therapy with biologics. Another significant determinant of patient satisfaction with medical care was the provision of information about HS by dermatologists, which was linked to consultations occurring at least quarterly and lasting ≥ 20 min. No association was observed between disease severity and the identified determinants of patient satisfaction with medical care. Dermatologists’ satisfaction with medical care was additionally linked with the perceived availability of referral options to other dermatological facilities.</p> Conclusions <p>Improvements in patient satisfaction with HS care may be achieved through enhanced patient education about the disease and regular dermatologist consultations; however, optimal HS management ultimately requires effective pharmacological treatment.</p> Trial Registration <p>drks.de, DRKS00031572.</p>

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Determinants of Satisfaction with Medical Care for Hidradenitis Suppurativa: Results from a Multicentre Survey in Germany

  • 期刊论文

  • 出版模式：

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  • 发表日期：

    2025年10月9日

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  • Kerstin Wolk,
  • Dagmar Wilsmann-Theis,
  • Nessr Abu Rached,
  • Giorgia Cugno,
  • Rotraut Moessner,
  • Christian Kromer,
  • Falk G. Bechara,
  • Katharina Assaf,
  • Wiebke K. Peitsch,
  • Lisa C. Schneider,
  • Andreas Happ,
  • Valentina Siddi,
  • Diana Kubitzki,
  • Durdana Groß,
  • Markus Friedrich,
  • Staffan Vandersee,
  • Khusru Asadullah,
  • Sylke Schneider-Burrus,
  • Georgios Kokolakis,
  • Robert Sabat

摘要

Introduction

Hidradenitis suppurativa (HS) is a chronic inflammatory skin disease associated with considerable physical and psychosocial distress. Recent studies have reported low levels of satisfaction among patients with HS regarding the medical care of their condition. The objective of the study was to identify modifiable determinants of low satisfaction with HS care from both patient and dermatologist perspectives.

Methods

This prospective, questionnaire-based survey was conducted among patients with HS and, for comparison, among those with psoriasis, as well as their treating dermatologists, in 20 dermatological centres in Germany.

Results

A total of 257 patients and 76 dermatologists participated in the study. The proportion of patients reporting high satisfaction with care for their skin disease (scores > 8 on a 0–10 scale) was 30.7% for HS and 69.4% for psoriasis (P < 0.001). The proportion of dermatologists highly satisfied with medical care for HS and psoriasis was 0.0% and 38.9%, respectively (P < 0.001). Multiple regression modelling revealed that satisfaction with pharmacotherapy was the primary predictor of medical care satisfaction for both patients and dermatologists. Experience with systemic antibiotics was associated with lower patient satisfaction regarding pharmacotherapy, while satisfaction tended to be higher when patients had experienced therapy with biologics. Another significant determinant of patient satisfaction with medical care was the provision of information about HS by dermatologists, which was linked to consultations occurring at least quarterly and lasting ≥ 20 min. No association was observed between disease severity and the identified determinants of patient satisfaction with medical care. Dermatologists’ satisfaction with medical care was additionally linked with the perceived availability of referral options to other dermatological facilities.

Conclusions

Improvements in patient satisfaction with HS care may be achieved through enhanced patient education about the disease and regular dermatologist consultations; however, optimal HS management ultimately requires effective pharmacological treatment.

Trial Registration

drks.de, DRKS00031572.