Mütter mit entzündlich-rheumatischen Erkrankungen: Herausforderungen bei der Versorgung der Kinder
摘要
Inflammatory rheumatic diseases (IRD) frequently affect women of childbearing age, impacting everyday life through pain, fatigue, and restricted mobility. However, thanks to early diagnosis and modern therapies, those affected now have a better quality of life, and starting a family is a realistic goal. Nevertheless, women with IRD face particular challenges in everyday family life. After giving birth, they must cope with not only the demands of a newborn baby, but also the often serious consequences of their illness. Physical limitations can make everyday tasks such as changing diapers, carrying the child and cooking more demanding. Studies using the “Parenting Disability Index” (PDI) show that many mothers experience difficulties with childcare, particularly when caring for younger children. Pain and fatigue are common causes. Women with IRD also report emotional stress and feelings of guilt. They have a considerable need for information, both when planning a pregnancy and in the postnatal period.