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Objective <p>This study aimed to assess parental perceptions of their children’s quality of life (QoL) who had craniofacial clefts, focusing on aesthetics, speech, function and psychology.</p> Design and Setting <p>The study enrolled parents of children aged 5–15 with craniofacial clefts who had received soft tissue correction. Parents completed a questionnaire evaluating their children’s QoL post-surgery.</p> Outcome <p>Findings revealed that parents observed a significant improvement in their children’s QoL following surgical intervention. Notable enhancements were noted in facial appearance, a substantial reduction in instances of teasing and bullying, improved relationships with friends and family, and increased self-confidence among the affected children.</p> Conclusion <p>Surgical intervention showed a positive influence on these children’s facial appearance, speech, self-esteem, social integration, physical well-being and psychological functioning. As a result, it contributed to an overall enhancement in their QoL, emphasizing the importance of such procedures in improving the lives of children with facial clefts.</p>

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Challenges and Outcomes of Rare Cranio Facial Clefts: Parents Perspective

  • 期刊论文

  • 发表日期：

    2025年10月14日

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  • Ria Mukharjee,
  • Srivalli Natarajan,
  • Adil Gandevivala,
  • Gaurav Deshpande,
  • Gaurav Chopade

摘要

Objective

This study aimed to assess parental perceptions of their children’s quality of life (QoL) who had craniofacial clefts, focusing on aesthetics, speech, function and psychology.

Design and Setting

The study enrolled parents of children aged 5–15 with craniofacial clefts who had received soft tissue correction. Parents completed a questionnaire evaluating their children’s QoL post-surgery.

Outcome

Findings revealed that parents observed a significant improvement in their children’s QoL following surgical intervention. Notable enhancements were noted in facial appearance, a substantial reduction in instances of teasing and bullying, improved relationships with friends and family, and increased self-confidence among the affected children.

Conclusion

Surgical intervention showed a positive influence on these children’s facial appearance, speech, self-esteem, social integration, physical well-being and psychological functioning. As a result, it contributed to an overall enhancement in their QoL, emphasizing the importance of such procedures in improving the lives of children with facial clefts.