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<p>Citizen science in which people investigate personal health questions can be regarded as the ‘zero’ or ‘base-line’ of health research. This type of research can lead to functional and consequential discoveries. However, the personal research capacities of citizens are hardly used in regular health research, nor in healthcare, while they could constitute the basis for it. This article outlines the development of the ‘zero-line’ of health research propelled by the Self Research Network Netherlands and its partners in the broader patient movement, and that they connect to regular ways of knowledge development.</p>

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De nulde lijn van het gezondheidsonderzoek: betekenis, aanpak en randvoorwaarden

  • 期刊论文

  • 出版模式：

    开放获取

  • 发表日期：

    2026年7月22日

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  • Gaston Remmers,
  • Gerritjan Koekkoek,
  • Ilona Wilmont,
  • Titus Radstake,
  • Marco Koning,
  • Henk Duinkerken,
  • Jan Meijerink,
  • Gerard van Oortmerssen,
  • Anje te Velde,
  • Hester van de Bovenkamp,
  • Peter Voshol,
  • Idelette Nutma,
  • Joop van Gent,
  • Rianne Wolswinkel,
  • Esther Bloem,
  • Kirsten Bevelander,
  • Rosanne Hertzberger,
  • Marina Boeser,
  • Steff Beerenfenger,
  • Maaike de Vette,
  • Martijn de Groot,
  • Douwe Atsma

摘要

Citizen science in which people investigate personal health questions can be regarded as the ‘zero’ or ‘base-line’ of health research. This type of research can lead to functional and consequential discoveries. However, the personal research capacities of citizens are hardly used in regular health research, nor in healthcare, while they could constitute the basis for it. This article outlines the development of the ‘zero-line’ of health research propelled by the Self Research Network Netherlands and its partners in the broader patient movement, and that they connect to regular ways of knowledge development.