Registerbasierte Krebsforschung in Deutschland

Overall, the Gesundheitsdatennutzungsgesetz (Health Data Utilization Act), the Registergesetz (Registry Act), and the Gesetz zur Zusammenführung von Krebsregisterdaten (Act on the Consolidation of Cancer Registry Data) provide a legal framework that makes it possible to use health data effectively and securely to advance cancer research and improve the quality of cancer care. The aim is to promote innovation in registry-based cancer research so that Germany can achieve an internationally compatible status in this area. In this article, the implementation status of registry-based cancer research is presented by describing current legislative initiatives and exemplified by important projects such as the concept development for the stage 2 platform (Plato 2), “Personalized Medicine for Oncology (PM4Onco),” the nationwide Oncological Quality Conference and the newly developed advanced training course “Registry-Based Research (Regiba).”