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Purpose of Review <p>Highlight palliative care and liver disease literature published in the last five years that includes practices to engage patients and caregivers in their care and to facilitate understanding of the liver disease trajectory from diagnosis to end of life. We focused the review on “engagement” because of engagement’s emphasis on the therapeutic relationships among patients, caregivers, and healthcare providers.</p> Recent Findings <p>Patients with cirrhosis often have limited knowledge of liver disease and lack understanding of its trajectory. Research shows that discussions about prognosis and end-of-life occur infrequently. Yet many patients want to be engaged in discussions of prognosis and disease progression early on. Palliative care is underutilized in these patients, and rates of advance care planning are low.</p> Summary <p>In the early stages, to address patient and caregiver needs, many principles of palliative care can be incorporated into the care delivered by hepatology teams across the entire trajectory of both compensated and decompensated cirrhosis. Future work could include development and testing of health services interventions to evaluate and adapt palliative care, communication frameworks, care planning in the much-earlier stages of liver disease, and implementation studies to understand how to best promote effective partnerships between palliative care and hepatology.</p>

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Patient and Caregiver Engagement Across the Trajectory of Liver Disease and the Potential Role of Palliative Care

  • 期刊论文

  • 发表日期：

    2025年5月30日

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  • Lissi Hansen,
  • Christopher D. Woodrell

摘要

Purpose of Review

Highlight palliative care and liver disease literature published in the last five years that includes practices to engage patients and caregivers in their care and to facilitate understanding of the liver disease trajectory from diagnosis to end of life. We focused the review on “engagement” because of engagement’s emphasis on the therapeutic relationships among patients, caregivers, and healthcare providers.

Recent Findings

Patients with cirrhosis often have limited knowledge of liver disease and lack understanding of its trajectory. Research shows that discussions about prognosis and end-of-life occur infrequently. Yet many patients want to be engaged in discussions of prognosis and disease progression early on. Palliative care is underutilized in these patients, and rates of advance care planning are low.

Summary

In the early stages, to address patient and caregiver needs, many principles of palliative care can be incorporated into the care delivered by hepatology teams across the entire trajectory of both compensated and decompensated cirrhosis. Future work could include development and testing of health services interventions to evaluate and adapt palliative care, communication frameworks, care planning in the much-earlier stages of liver disease, and implementation studies to understand how to best promote effective partnerships between palliative care and hepatology.