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Cancer survivorship programs at the Dana-Farber Cancer Institute

  • Ann H. Partridge,
  • Alicia Morgans,
  • Lauren P. Knelson,
  • Christopher Recklitis,
  • Larissa Nekhlyudov,
  • Susan N. Chi,
  • Lisa B. Kenney,
  • Lisa Diller,
  • Lynda M. Vrooman

摘要

Purpose

We sought to present the current status of survivorship programs at Dana-Farber Cancer Institute which include the David B. Perini, Jr. Quality of Life Clinic for survivors of childhood cancer, Stop and Shop Neuro-Oncology Outcomes Clinic for pediatric brain tumor survivors, and Adult Survivorship Program for adult cancer survivors including those diagnosed as adults (age 18 years and older) and adult survivors of childhood cancer, in an effort to share best practices as well as challenges.

Methods

Description of programs and discussion.

Results

Our institutional programs are detailed regarding their history and the multidisciplinary approach and both consultative and long-term care delivery models for pediatric and adult cancer survivors, with the goal of meeting the spectrum of survivorship care needs, from diagnosis and management of long-term effects of cancer-directed therapy and surveillance for subsequent cancer, to healthy lifestyle promotion and psychosocial support. Program investigators conduct research to understand the risks and unmet needs of cancer survivors, and to develop and test interventions to improve care delivery and medical and psychosocial outcomes. There are also educational initiatives detailed.

Conclusions

Survivorship programs at Dana-Farber are designed to optimize care and outcomes for cancer survivors including conducting quality improvement initiatives and research to further understand and meet the clinical needs of the large, heterogenous, and growing population cancer survivors into the future.

Implications for Cancer Survivors

Programs like ours as well as those ongoing and planned aim to improve the comprehensive care of diverse cancer survivors.