Background <p>Cancer survivors report changes in sexuality and intimacy that persist beyond the treatment period. In Germany, these issues remain underaddressed in healthcare.</p> Aim <p>In an exploratory study, we examined these issues from three complementary perspectives.</p> Methods <p>We conducted (1) qualitative expert interviews with healthcare professionals (<i>n</i> = 6), (2) a&#xa0;thematic analysis of publicly available informational brochures (<i>n</i> = 14), and (3) a&#xa0;media analysis of posts from three publicly accessible online forums (<i>n</i> = 15&#xa0;threads comprising 330 posts). All sub-studies were analyzed using thematic analysis with the three levels of Sexual Script Theory as the deductive coding framework – cultural scripts (macro), interpersonal scripts (meso), and intrapsychic scripts (micro).</p> Results <p>The analyses indicate a&#xa0;gap in care across all three SST levels: societal taboos (macro) and structural barriers in healthcare (meso) reinforce individual shame and silence (micro). A pattern of systemic silence became evident: those affected rarely raise the topic, and healthcare professionals do not address it proactively. There is a lack of care structures that support the discussion of these issues. Informational materials frame sexuality predominantly in medical-functional terms. The exchange in online forums highlights this gap in care from the perspective of those affected.</p> Conclusion <p>The findings underline the need for further research and for systematically improved care regarding sexuality and intimacy after cancer.</p>

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Sexualität und Intimität nach einer Krebserkrankung

  • Marlen Niederberger,
  • Lotta Jahl,
  • Viola Geberzahn

摘要

Background

Cancer survivors report changes in sexuality and intimacy that persist beyond the treatment period. In Germany, these issues remain underaddressed in healthcare.

Aim

In an exploratory study, we examined these issues from three complementary perspectives.

Methods

We conducted (1) qualitative expert interviews with healthcare professionals (n = 6), (2) a thematic analysis of publicly available informational brochures (n = 14), and (3) a media analysis of posts from three publicly accessible online forums (n = 15 threads comprising 330 posts). All sub-studies were analyzed using thematic analysis with the three levels of Sexual Script Theory as the deductive coding framework – cultural scripts (macro), interpersonal scripts (meso), and intrapsychic scripts (micro).

Results

The analyses indicate a gap in care across all three SST levels: societal taboos (macro) and structural barriers in healthcare (meso) reinforce individual shame and silence (micro). A pattern of systemic silence became evident: those affected rarely raise the topic, and healthcare professionals do not address it proactively. There is a lack of care structures that support the discussion of these issues. Informational materials frame sexuality predominantly in medical-functional terms. The exchange in online forums highlights this gap in care from the perspective of those affected.

Conclusion

The findings underline the need for further research and for systematically improved care regarding sexuality and intimacy after cancer.