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Background <p>In the health care system, the focus is usually only on the person with the disease. Relatives only come into focus when they themselves exhibit pathological behavior. Little is known about the challenges families face when a&#xa0;parent with a&#xa0;physically serious chronic illness lives in the household.</p> Objectives and methodology <p>Families were interviewed to determine how they cope with the chronic illness of a&#xa0;parent. The whole research process, including qualitative data analysis, was carried out in a&#xa0;participatory way by a&#xa0;team of researchers, practitioners, and mothers with chronic conditions.</p> Results <p>The families interviewed reported on how they cope with the disease situation and what changes occur during the chronic course of the disease. They described communication situations, the support they have received or are receiving, and the learning processes they are going through.</p> Conclusion <p>Families create a&#xa0;‘doing chronic illness in family’ by making caring a&#xa0;new normality. The FamGesund data show that health literacy is a&#xa0;communicative action and that the learning processes go far beyond the illness situation. Family health is an interdisciplinary and interprofessional issue and should be given more weight in theory and practice.</p>

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Familiengesundheit: Wenn ein Elternteil körperlich schwerwiegend chronisch krank ist

  • 期刊论文

  • 出版模式：

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  • 发表日期：

    2025年5月28日

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  • Yvonne Adam,
  • Birgit Behrisch

摘要

Background

In the health care system, the focus is usually only on the person with the disease. Relatives only come into focus when they themselves exhibit pathological behavior. Little is known about the challenges families face when a parent with a physically serious chronic illness lives in the household.

Objectives and methodology

Families were interviewed to determine how they cope with the chronic illness of a parent. The whole research process, including qualitative data analysis, was carried out in a participatory way by a team of researchers, practitioners, and mothers with chronic conditions.

Results

The families interviewed reported on how they cope with the disease situation and what changes occur during the chronic course of the disease. They described communication situations, the support they have received or are receiving, and the learning processes they are going through.

Conclusion

Families create a ‘doing chronic illness in family’ by making caring a new normality. The FamGesund data show that health literacy is a communicative action and that the learning processes go far beyond the illness situation. Family health is an interdisciplinary and interprofessional issue and should be given more weight in theory and practice.