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Wie leben Kinder und Familien mit AID-Systemen?

  • Karin Lange,
  • Heike Saßmann

摘要

Automated insulin delivery (AID) has led to an impressive improvement in the blood glucose levels of many children and adolescents with diabetes in just a few years. In addition to metabolic values, AID systems have a positive impact on many areas of everyday family life. Parents of younger children or adolescents are relieved of the complex and difficult task of calculating the correct insulin dose. They gain greater security against hypoglycemia, especially at night. A sense of self-efficacy in diabetes management motivates those who have resigned themselves to self-management after many frustrating efforts to control their diabetes. The perspective of those who live with an AID system on a daily basis is becoming increasingly important as PROs (person-reported outcomes) in the evaluation of new diabetes technologies. Studies of AID systems have shown improved sleep for children and parents, as well as evidence of reduced diabetes distress, reduced fear of hypoglycemia, and other improvements in diabetes-related quality of life. However, data are still very limited. An AID system still requires committed self-management by all users and must be integrated into an age-appropriate daily routine of school and leisure activities. Specific knowledge and skills are essential. Diabetes teams can help families get started by working with them to develop realistic expectations of an AID system, and then providing in-depth practical training that addresses the challenges of everyday life for young people with diabetes and their parents.