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<p>Sexual health is a crucial aspect of life for individuals with spinal cord injuries (SCI), yet cultural taboos, religious sensitivities, and societal norms often hinder open discussion, education, and counseling. This descriptive-analytical cross-sectional study aimed to evaluate the sources of sexual health information available to SCI survivors in Iran, assess their level of knowledge, and explore the relationship between knowledge and sexual adjustment. Data were collected using a three-part questionnaire that included demographic information, a validated researcher-developed sexual knowledge questionnaire, and the Sexual Adjustment Questionnaire (SAQ). Among 92 SCI patients aged 18 to 60, 77% reported experiencing sexual dysfunction, and 46.7% identified social media as their primary source of information, while only 5.4% cited medical staff. The average sexual knowledge score was 7.86 (out of 18), and the mean sexual adjustment score was 28 (out of 55). No significant relationship was found between sources of information and levels of knowledge or adjustment. However, a modest but significant positive correlation was observed between sexual knowledge and adjustment (ρ = 0.265, p = 0.012), suggesting that increasing awareness may contribute to improved psychosocial adaptation, even though knowledge alone is insufficient. Reported barriers to seeking information included neglect by healthcare teams (37%), feelings of shame (32.6%), and a lack of prioritization by patients. These findings highlight a critical yet nuanced cultural blind spot reflecting deep-rooted taboos, modesty norms and communication barriers between healthcare providers and patients in Iranian society.</p>

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Sexual Information Sources in Spinal Cord Injury survivors: A Cultural Blind Spot

  • 期刊论文

  • 发表日期：

    2025年12月23日

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  • Elham Loni,
  • Zhale Zandieh,
  • Nazanin Rousta,
  • Seyed Majid Akhavan Hejazi,
  • Shamaneh Mohamadi,
  • Asieh Soghrati,
  • Raziye Sadat Hosseini,
  • Razieh Bidhendi-Yarandi

摘要

Sexual health is a crucial aspect of life for individuals with spinal cord injuries (SCI), yet cultural taboos, religious sensitivities, and societal norms often hinder open discussion, education, and counseling. This descriptive-analytical cross-sectional study aimed to evaluate the sources of sexual health information available to SCI survivors in Iran, assess their level of knowledge, and explore the relationship between knowledge and sexual adjustment. Data were collected using a three-part questionnaire that included demographic information, a validated researcher-developed sexual knowledge questionnaire, and the Sexual Adjustment Questionnaire (SAQ). Among 92 SCI patients aged 18 to 60, 77% reported experiencing sexual dysfunction, and 46.7% identified social media as their primary source of information, while only 5.4% cited medical staff. The average sexual knowledge score was 7.86 (out of 18), and the mean sexual adjustment score was 28 (out of 55). No significant relationship was found between sources of information and levels of knowledge or adjustment. However, a modest but significant positive correlation was observed between sexual knowledge and adjustment (ρ = 0.265, p = 0.012), suggesting that increasing awareness may contribute to improved psychosocial adaptation, even though knowledge alone is insufficient. Reported barriers to seeking information included neglect by healthcare teams (37%), feelings of shame (32.6%), and a lack of prioritization by patients. These findings highlight a critical yet nuanced cultural blind spot reflecting deep-rooted taboos, modesty norms and communication barriers between healthcare providers and patients in Iranian society.