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Aims <p>To evaluate and synthesize the psychometric properties of generic instruments measuring self-management abilities and behaviors in patients with chronic diseases that have been validated in the literature.</p> Design <p>A systematic review of psychometric properties with the COnsensus-based Standards for the Selection of health Measurement INstruments (COSMIN) methodology.</p> Methods <p>A systematic search was conducted in PubMed, EMBASE, Web of Science, Scopus, CINAHL, ProQuest Health and Medical Collection, CNKI and WANFANG DATA from May 15, 2025 to May 20, 2025. Inclusion of articles published before May 15, 2025. Two independent researchers screened literatures, extracted data and evaluated psychometric properties using COSMIN criteria while assessing evidence quality via the GRADE method. This review was reported following PRISMA-COSMIN for OMIs 2024 statement checklist.</p> Results <p>We identified 15 eligible instruments from 58 studies. Among these, CanSMART Self-management Task Questionnaire (CanSMART) and Patient-Reported Outcomes Measurement Information System (PROMIS) were recommended against use. Other instruments were classified as <i>No Conclusion</i>, indicating they may be suitable for use but require further validation. The Short Form Patient Activation Measure (PAM-13) and Six-item Self-Efficacy to Manage Chronic Disease Scale (SEMCD-6) were recommended for current use based on their sufficient content validity.</p> Conclusion <p>With the exception of CanSMART and PROMIS, all instruments require further validation. The PAM-13 and SEMCD-6 stand out as the most currently applicable instruments. These findings support healthcare providers, researchers, and policymakers in selecting validated instruments to assess and enhance self-management in chronic disease populations, ultimately contributing to improved patient-centered care, quality of life, and health outcomes.</p>

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Generic instruments for assessing self-management abilities and behaviors in patients with chronic diseases: a COnsensus-based standards for the selection of health measurement INstruments (COSMIN)-based systematic review

  • 期刊论文

  • 发表日期：

    2026年2月1日

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  • Ke Liu,
  • Guangyan Meng,
  • Caixia Li,
  • Shuyi Wang,
  • Xianwen Fan,
  • Qirong Chen

摘要

Aims

To evaluate and synthesize the psychometric properties of generic instruments measuring self-management abilities and behaviors in patients with chronic diseases that have been validated in the literature.

Design

A systematic review of psychometric properties with the COnsensus-based Standards for the Selection of health Measurement INstruments (COSMIN) methodology.

Methods

A systematic search was conducted in PubMed, EMBASE, Web of Science, Scopus, CINAHL, ProQuest Health and Medical Collection, CNKI and WANFANG DATA from May 15, 2025 to May 20, 2025. Inclusion of articles published before May 15, 2025. Two independent researchers screened literatures, extracted data and evaluated psychometric properties using COSMIN criteria while assessing evidence quality via the GRADE method. This review was reported following PRISMA-COSMIN for OMIs 2024 statement checklist.

Results

We identified 15 eligible instruments from 58 studies. Among these, CanSMART Self-management Task Questionnaire (CanSMART) and Patient-Reported Outcomes Measurement Information System (PROMIS) were recommended against use. Other instruments were classified as No Conclusion, indicating they may be suitable for use but require further validation. The Short Form Patient Activation Measure (PAM-13) and Six-item Self-Efficacy to Manage Chronic Disease Scale (SEMCD-6) were recommended for current use based on their sufficient content validity.

Conclusion

With the exception of CanSMART and PROMIS, all instruments require further validation. The PAM-13 and SEMCD-6 stand out as the most currently applicable instruments. These findings support healthcare providers, researchers, and policymakers in selecting validated instruments to assess and enhance self-management in chronic disease populations, ultimately contributing to improved patient-centered care, quality of life, and health outcomes.